Standard terminology on demand: facilitating distributed and real-time use of SNOMED CT during the clinical research process.

The NIH roadmap endorses the use of data standards in clinical research that are compatible with health care data standards. To facilitate standards use, members of the Rare Disease Clinical Research Network have developed tools to support study investigators and research staff to code clinical research data using SNOMED CT at the point of research. This tool is customized to help the user will find desired and appropriate SNOMED CT concepts quickly.