Literature DB >> 1718220

A special conditions register.

C Woodroffe1, A Abra.   

Abstract

A special conditions register (SCR) linked to the child health system's register of all children has been in use in West Sussex since 1977. This paper describes the aims, organisation, and use of the SCR and gives examples of the aggregated data that may be obtained. Of the 155,000 children aged 0-17 resident in West Sussex in 1990, 4.3% were included on the SCR. Altogether 45.7% of children on the SCR had physical conditions with mild or no disability and 17.2% had moderate educational problems. The prevalence of severe hearing loss as defined was 1.7 per 1000 aged 5-17. The prevalence of diabetes mellitus was 1.2 per 1000 children aged 0-17. Validation of the SCR for diabetes mellitus found 35/36 of the eligible children were correctly registered and no child was incorrectly included. The conflicting priorities for maintaining a register for the care of individual children, for service planning, and for epidemiological research are discussed.

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Year:  1991        PMID: 1718220      PMCID: PMC1793459          DOI: 10.1136/adc.66.8.927

Source DB:  PubMed          Journal:  Arch Dis Child        ISSN: 0003-9888            Impact factor:   3.791


  11 in total

1.  Establishing a register of children with special needs.

Authors:  A F Colver; A Robinson
Journal:  Arch Dis Child       Date:  1989-08       Impact factor: 3.791

2.  The role of registers in epidemiology: discussion paper.

Authors:  J R Thompson
Journal:  J R Soc Med       Date:  1989-03       Impact factor: 5.344

3.  The Register of Children with Special Needs--an approach.

Authors:  M C O'Mahony; M Allsop; C Heath; C Deaves; R Morris
Journal:  Public Health       Date:  1987-01       Impact factor: 2.427

4.  Measuring birth defects and handicapping disorders in the population: the British Columbia Health Surveillance Registry.

Authors:  P A Baird
Journal:  CMAJ       Date:  1987-01-15       Impact factor: 8.262

5.  A method for the validation of data in a register.

Authors:  D H Stone
Journal:  Public Health       Date:  1986-09       Impact factor: 2.427

6.  A comparative case study of handicap registers for pre-school children.

Authors:  R Balarajan
Journal:  Public Health       Date:  1983-01       Impact factor: 2.427

7.  A survey of handicap registers for pre-school children in England and Wales.

Authors:  R Balarajan; J A Weatherall; J S Ashley; B R Bewley
Journal:  Community Med       Date:  1982-11

8.  Computing in child health: significant progress.

Authors:  C H Walker
Journal:  Br Med J (Clin Res Ed)       Date:  1983-11-12

Review 9.  A regional register of early childhood impairments: a discussion paper. The Steering Committee of the Oxford Region Child Development Project.

Authors:  A Johnson; R King
Journal:  Community Med       Date:  1989-11

10.  Chronic neutropenia during childhood. A 13-year experience in a single institution.

Authors:  O G Jonsson; G R Buchanan
Journal:  Am J Dis Child       Date:  1991-02
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  7 in total

1.  The need for and the role of a coordinator in child health surveillance/promotion.

Authors:  M Blair
Journal:  Arch Dis Child       Date:  2001-01       Impact factor: 3.791

2.  Taking a population perspective on child health.

Authors:  M Blair
Journal:  Arch Dis Child       Date:  2000-07       Impact factor: 3.791

3.  Cerebral palsy and socioeconomic status: a retrospective cohort study.

Authors:  R Sundrum; S Logan; A Wallace; N Spencer
Journal:  Arch Dis Child       Date:  2005-01       Impact factor: 3.791

4.  Survey of UK computerised special needs registers.

Authors:  T Hutchison; V Harpin
Journal:  Arch Dis Child       Date:  1998-04       Impact factor: 3.791

Review 5.  Use of registers in child health.

Authors:  A Johnson
Journal:  Arch Dis Child       Date:  1995-06       Impact factor: 3.791

6.  Can routine information systems be used to monitor serious disability?

Authors:  A Johnson; R King
Journal:  Arch Dis Child       Date:  1999-01       Impact factor: 3.791

7.  Child abuse registration, fetal growth, and preterm birth: a population based study.

Authors:  Nick Spencer; Ann Wallace; Ratna Sundrum; Claire Bacchus; Stuart Logan
Journal:  J Epidemiol Community Health       Date:  2006-04       Impact factor: 3.710

  7 in total

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