Literature DB >> 17101620

'It's okay, it helps me to breathe': the experience of home ventilation from a child's perspective.

Rebecca J Earle1, Janet E Rennick, Franco A Carnevale, G Michael Davis.   

Abstract

There are few studies that focus on children's subjective responses to home ventilation and how this in turn affects their daily lives. This multiple case study explored the experience of home ventilation from the children's perspective. Data were collected from five children through observation and audiotaped interviews. Children expressed their physical and emotional relationship with the ventilator, stating: 'It's okay. It helps me to breathe' - a theme that had a number of distinct dimensions. Other themes included the medicalization of childhood, being a child and hopes for the future. Unlike other study findings to date, the children in this study concluded that the technology was only one small part of their lives. Nurses must ensure that these children have an opportunity to communicate their perspectives, in order to provide care that is clinically effective and child-centered.

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Year:  2006        PMID: 17101620     DOI: 10.1177/1367493506067868

Source DB:  PubMed          Journal:  J Child Health Care        ISSN: 1367-4935            Impact factor:   1.979


  3 in total

Review 1.  Ethical challenges with welfare technology: a review of the literature.

Authors:  Bjørn Hofmann
Journal:  Sci Eng Ethics       Date:  2012-01-05       Impact factor: 3.525

2.  Survey of financial burden of families in the U.S. with children using home mechanical ventilation.

Authors:  Jeffrey D Edwards; Howard B Panitch; Andrei Constantinescu; Rachel L Miller; Patricia W Stone
Journal:  Pediatr Pulmonol       Date:  2017-11-20

Review 3.  Proceedings of the fourth international conference on central hypoventilation.

Authors:  Ha Trang; Jean-François Brunet; Hermann Rohrer; Jorge Gallego; Jeanne Amiel; Tiziana Bachetti; Kenneth H Fischbeck; Thomas Similowski; Christian Straus; Isabella Ceccherini; Debra E Weese-Mayer; Matthias Frerick; Katarzyna Bieganowska; Linda Middleton; Francesco Morandi; Giancarlo Ottonello
Journal:  Orphanet J Rare Dis       Date:  2014-12-05       Impact factor: 4.123

  3 in total

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