Literature DB >> 17098515

Transition and transfer from pediatric to adult care of the young adult with complex congenital heart disease.

Alison Knauth1, Amy Verstappen, John Reiss, Gary D Webb.   

Abstract

This article focuses first on the process of transition and transfer of care of young adults with complex congenital heart disease. It defines the transition process and briefly discusses its history. It reviews the important aspects of transition, outlines the key elements of a successful transition program, and provides a curriculum appropriate for the young adult with congenital heart disease. Finally, it identifies the barriers to transfer of care, discusses the importance of a policy on timing, outlines the components of adult provider services that may be needed, and reviews the steps to an orderly transfer process.

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Year:  2006        PMID: 17098515     DOI: 10.1016/j.ccl.2006.08.010

Source DB:  PubMed          Journal:  Cardiol Clin        ISSN: 0733-8651            Impact factor:   2.213


  19 in total

Review 1.  Transition of care for young adult survivors of childhood and adolescent cancer: rationale and approaches.

Authors:  David R Freyer
Journal:  J Clin Oncol       Date:  2010-03-29       Impact factor: 44.544

2.  Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ--Transition Readiness Assessment Questionnaire.

Authors:  Gregory S Sawicki; Katryne Lukens-Bull; Xiaoping Yin; Nathan Demars; I-Chan Huang; William Livingood; John Reiss; David Wood
Journal:  J Pediatr Psychol       Date:  2009-12-29

3.  Transition and transfer from pediatric to adult care of young adults with complex congenital heart disease.

Authors:  Alison Knauth Meadows; Valerie Bosco; Elizabeth Tong; Susan Fernandes; Arwa Saidi
Journal:  Curr Cardiol Rep       Date:  2009-07       Impact factor: 2.931

4.  Assessment of transition readiness skills and adherence in pediatric liver transplant recipients.

Authors:  Emily M Fredericks; Dawn Dore-Stites; Andrew Well; John C Magee; Gary L Freed; Victoria Shieck; M James Lopez
Journal:  Pediatr Transplant       Date:  2010-12

5.  Transfer from paediatric rheumatology to the adult rheumatology setting: experiences and expectations of young adults with juvenile idiopathic arthritis.

Authors:  Deborah Hilderson; Leen Eyckmans; Kristien Van der Elst; Rene Westhovens; Carine Wouters; Philip Moons
Journal:  Clin Rheumatol       Date:  2012-12-14       Impact factor: 2.980

6.  Prevalence and predictors of gaps in care among adult congenital heart disease patients: HEART-ACHD (The Health, Education, and Access Research Trial).

Authors:  Michelle Gurvitz; Anne Marie Valente; Craig Broberg; Stephen Cook; Karen Stout; Joseph Kay; Jennifer Ting; Karen Kuehl; Michael Earing; Gary Webb; Linda Houser; Alexander Opotowsky; Amy Harmon; Dionne Graham; Paul Khairy; Ann Gianola; Amy Verstappen; Michael Landzberg
Journal:  J Am Coll Cardiol       Date:  2013-03-28       Impact factor: 24.094

7.  Attitudes of rheumatology practitioners toward transition and transfer from pediatric to adult healthcare.

Authors:  Deborah Hilderson; Philip Moons; Rene Westhovens; Carine Wouters
Journal:  Rheumatol Int       Date:  2011-12-23       Impact factor: 2.631

8.  Provision of Transition Education and Referral Patterns from Pediatric Cardiology to Adult Cardiac Care.

Authors:  Anna L Harbison; Stafford Grady; Kevin Chi; Susan M Fernandes
Journal:  Pediatr Cardiol       Date:  2015-09-18       Impact factor: 1.655

Review 9.  So hard to say goodbye: transition from paediatric to adult cardiology care.

Authors:  Adrienne H Kovacs; Brian W McCrindle
Journal:  Nat Rev Cardiol       Date:  2013-11-12       Impact factor: 32.419

10.  High rates of unsuccessful transfer to adult care among young adults with juvenile idiopathic arthritis.

Authors:  Elizabeth Hazel; Xun Zhang; Ciarán M Duffy; Sarah Campillo
Journal:  Pediatr Rheumatol Online J       Date:  2010-01-11       Impact factor: 3.054

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