Literature DB >> 17088520

Adolescent and parent perceptions on youth participation in risk behavior research.

Ryan H Pasternak1, Gail Geller, Catherine Parrish, Tina L Cheng.   

Abstract

OBJECTIVES: To assess and compare parent and adolescent views on the importance of risk behavior research and the need for parental consent and to identify predictors of views.
DESIGN: Confidential survey.
SETTING: Adolescent, general pediatrics clinics. PARTICIPANTS: Adolescents aged 14 to 17 years presenting alone (solo) or with a parent or guardian (paired) and parents or guardians. Of 265 eligible pairs (199 solo adolescents), 134 (93) had useable surveys. The proportion of females in the parent or guardian, paired adolescent, and solo adolescent groups was 92%, 59%, and 75%, respectively; and the proportion of African Americans in these groups was 67%, 69%, and 91%, respectively. MAIN OUTCOME MEASURES: Views on the importance of and requirement of parental consent for confidential risk behavior research.
RESULTS: Most parents (98%), paired adolescents (99%), and solo adolescents (100%) believed confidential risk behavior research surveys with teenagers were important; greater than 90% of all groups believed surveys should be conducted. The proportion of parents, paired adolescents, and solo adolescents that endorsed requiring parental permission was 84%, 53%, and 19%, respectively. Parents were less likely to endorse requiring permission if they had confidential health concerns as teenagers and were more likely to endorse requiring permission if their child was younger or female, if they believed their child had sex, and if they were a parent vs a guardian. Adolescents were more likely to endorse requiring permission if they were younger, not African American, and had more educated parents. Adolescents presenting with parents were more likely to endorse requiring permission.
CONCLUSIONS: Parents and adolescents believed risk behavior research with adolescents was important. Most parents believed parental permission is needed for participation. Compared with parents, fewer adolescents believed parental consent was necessary. It is not clear what effect requirement of parental permission would have on participation or validity. Further research is needed to elucidate views on adolescent risk behavior research.

Entities:  

Mesh:

Year:  2006        PMID: 17088520     DOI: 10.1001/archpedi.160.11.1159

Source DB:  PubMed          Journal:  Arch Pediatr Adolesc Med        ISSN: 1072-4710


  7 in total

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2.  Attitudes and beliefs toward biobehavioural research participation: voices and concerns of urban adolescent females receiving outpatient mental health treatment.

Authors:  Bridgette M Brawner; Ellen M Volpe; Jennifer M Stewart; Melissa M Gomes
Journal:  Ann Hum Biol       Date:  2013-07-03       Impact factor: 1.533

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Authors:  Verna L Hendricks-Ferguson; Brooke O Cherven; Debra S Burns; Sharron L Docherty; Celeste R Phillips-Salimi; Lona Roll; Kristin A Stegenga; Molly Donovan Stickler; Joan E Haase
Journal:  J Pediatr Health Care       Date:  2012-06-02       Impact factor: 1.812

4.  In their own voices: rural African American youth speak out about community-based HIV prevention interventions.

Authors:  Dionne Smith Coker-Appiah; Aletha Y Akers; Bahby Banks; Tashuna Albritton; Karyn Leniek; Mysha Wynn; Selena E Youmans; Donald Parker; Arlinda Ellison; Stacey Henderson; Doris Stith; Barbara Council; Patricia Oxendine-Pitt; Giselle Corbie-Smith
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5.  In their own voices: rural African-American youth speak out about community-based HIV prevention interventions.

Authors:  Dionne Smith Coker-Appiah; Aletha Y Akers; Bahby Banks; Tashuna Albritton; Karyn Leniek; Mysha Wynn; Selena E Youmans; Donald Parker; Arlinda Ellison; Stacey Henderson; Doris Stith; Barbara Council; Patricia Oxendine-Pitt; Giselle Corbie-Smith
Journal:  Prog Community Health Partnersh       Date:  2009

6.  Do confidentiality concerns impact pre-exposure prophylaxis willingness in emergency department adolescents and young adults?

Authors:  Kelvin L Moore; Shanna Dell; Miles K Oliva; Yu-Hsiang Hsieh; Richard E Rothman; Renata Arrington-Sanders
Journal:  Am J Emerg Med       Date:  2018-11-09       Impact factor: 2.469

7.  Identifying Ethical Issues in Mental Health Research with Minors Adolescents: Results of a Delphi Study.

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  7 in total

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