Literature DB >> 17085397

Tiered disclosure options promote the autonomy and well-being of research subjects.

Mark A Rothstein1.   

Abstract

Mesh：

Year:  2006        PMID： 17085397     DOI： 10.1080/15265160600934871

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  21 in total

Review 1.  Population biobanks and returning individual research results: mission impossible or new directions?

Authors:  Susan E Wallace; Alastair Kent
Journal:  Hum Genet       Date:  2011-06-05       Impact factor: 4.132

2.  Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results.

Authors:  Robin Zoe Hayeems; Fiona Alice Miller; Li Li; Jessica Peace Bytautas
Journal:  Eur J Hum Genet       Date:  2011-03-16       Impact factor: 4.246

3.  Consent to epistemic interventions: a contribution to the debate on the right (not) to know.

Authors:  Niels Nijsingh
Journal:  Med Health Care Philos       Date:  2016-03

4.  Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles.

Authors:  Laurence Baret; Beatrice Godard
Journal:  Eur J Hum Genet       Date:  2011-06-15       Impact factor: 4.246

5.  Offering individual genetic research results: context matters.

Authors:  Laura M Beskow; Wylie Burke
Journal:  Sci Transl Med       Date:  2010-06-30       Impact factor: 17.956

6.  Finding Fault? Exploring Legal Duties to Return Incidental Findings in Genomic Research.

Authors:  Elizabeth R Pike; Karen H Rothenberg; Benjamin E Berkman
Journal:  Georgetown Law J       Date:  2014

7.  Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.

Authors:  Ingrid A Holm; Brittany R Iles; Sonja I Ziniel; Phoebe L Bacon; Sarah K Savage; Kurt D Christensen; Elissa R Weitzman; Robert C Green; Noelle L Huntington
Journal:  J Empir Res Hum Res Ethics       Date:  2015-10       Impact factor: 1.742

8.  A framework for analyzing the ethics of disclosing genetic research findings.

Authors:  Lisa Eckstein; Jeremy R Garrett; Benjamin E Berkman
Journal:  J Law Med Ethics       Date:  2014       Impact factor: 1.718

9.  How do researchers manage genetic results in practice? The experience of the multinational Colon Cancer Family Registry.

Authors:  Louise A Keogh; Douglass Fisher; Sherri Sheinfeld Gorin; Sheri D Schully; Jan T Lowery; Dennis J Ahnen; Judith A Maskiell; Noralane M Lindor; John L Hopper; Terrilea Burnett; Spring Holter; Julie L Arnold; Steven Gallinger; Mercy Laurino; Mary-Jane Esplen; Pamela S Sinicrope
Journal:  J Community Genet       Date:  2013-05-24

Review 10.  Managing incidental findings in human subjects research: analysis and recommendations.

Authors:  Susan M Wolf; Frances P Lawrenz; Charles A Nelson; Jeffrey P Kahn; Mildred K Cho; Ellen Wright Clayton; Joel G Fletcher; Michael K Georgieff; Dale Hammerschmidt; Kathy Hudson; Judy Illes; Vivek Kapur; Moira A Keane; Barbara A Koenig; Bonnie S Leroy; Elizabeth G McFarland; Jordan Paradise; Lisa S Parker; Sharon F Terry; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718
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