Literature DB >> 17069266

Top 10 needs of people with multiple sclerosis and their significant others.

Wilma J Koopman1, Cathy-Lee Benbow, Margaret Vandervoort.   

Abstract

The purpose of this study was to identify the needs of patients with multiple sclerosis (MS) and their significant others. A quantitative questionnaire, developed from focus groups and consisting of 75 needs statements, was administered to 353 MS patients and 240 significant others. Analysis produced rankings of the 10 most important needs of both groups. Rankings by the MS patients and significant others were similar. Three themes emerged. Psychosocial and other personal needs (relationship with physicians, the MS healthcare team, family, and friends) were ranked with high frequency. Information needs (information regarding MS or available support) and financial security were also ranked as important. The data validate the importance of interdisciplinary care for the MS population.

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Year:  2006        PMID: 17069266     DOI: 10.1097/01376517-200610000-00008

Source DB:  PubMed          Journal:  J Neurosci Nurs        ISSN: 0888-0395            Impact factor:   1.230


  14 in total

1.  Educational, Psycho Mental and Socio economical needs of an Iranian Cohort with Multiple Sclerosis.

Authors:  Rashvand Farnoush; Mohammad Sahebolzamani; Leila Aliloo; Alireza Rahmani
Journal:  Oman Med J       Date:  2010-01

2.  Managing psychological stress in the multiple sclerosis medical visit: Patient perspectives and unmet needs.

Authors:  Angela Senders; Kelsi Sando; Helané Wahbeh; Amie Peterson Hiller; Lynne Shinto
Journal:  J Health Psychol       Date:  2014-12-19

3.  Unmet needs of patients feeling severely affected by multiple sclerosis in Germany: a qualitative study.

Authors:  Maren Galushko; Heidrun Golla; Julia Strupp; Ute Karbach; Claudia Kaiser; Nicole Ernstmann; Holger Pfaff; Christoph Ostgathe; Raymond Voltz
Journal:  J Palliat Med       Date:  2014-02-14       Impact factor: 2.947

4.  An assessment of genetic counseling services for individuals with multiple sclerosis.

Authors:  Stephanie Skinner; Colleen Guimond; Rachel Butler; Emily Dwosh; Anthony L Traboulsee; A Dessa Sadovnick
Journal:  J Genet Couns       Date:  2014-07-05       Impact factor: 2.537

5.  'You are just left to get on with it': qualitative study of patient and carer experiences of the transition to secondary progressive multiple sclerosis.

Authors:  F Davies; A Edwards; K Brain; M Edwards; R Jones; R Wallbank; N P Robertson; F Wood
Journal:  BMJ Open       Date:  2015-07-22       Impact factor: 2.692

6.  Iranian family caregivers' challenges and issues in caring of multiple sclerosis patients: A descriptive explorative qualitative study.

Authors:  Reza Masoudi; Heidar Ali Abedi; Parvin Abedi; Seyed Ehsan Mohammadianinejad
Journal:  Iran J Nurs Midwifery Res       Date:  2014-07

7.  Expectations of multiple sclerosis patients and their families: a qualitative study in iran.

Authors:  Shahla Abolhassani; Ahmadreza Yazdannik; Fariba Taleghani; Ahmadreza Zamani
Journal:  Iran Red Crescent Med J       Date:  2015-02-01       Impact factor: 0.611

8.  Managing the transition (ManTra): a resource for persons with secondary progressive multiple sclerosis and their health professionals: protocol for a mixed-methods study in Italy.

Authors:  Ambra Mara Giovannetti; Andrea Giordano; Erika Pietrolongo; Paolo Confalonieri; Giovanna De Luca; Carla Tortorella; Maria Trojano; Michele Messmer Uccelli; Valentina Torri Clerici; Lara Gitto; Sascha Köpke; Claudia Borreani; Christoph Heesen; Alessandra Solari
Journal:  BMJ Open       Date:  2017-08-23       Impact factor: 2.692

9.  What do multiple sclerosis patients and their caregivers perceive as unmet needs?

Authors:  Lorena Lorefice; Gioia Mura; Giulia Coni; Giuseppe Fenu; Claudia Sardu; Jessica Frau; Giancarlo Coghe; Marta Melis; Maria Giovanna Marrosu; Eleonora Cocco
Journal:  BMC Neurol       Date:  2013-11-15       Impact factor: 2.474

10.  EVASEP: A Noninterventional Study Describing the Perception of Neurologists, Patients, and Caregivers on Caregivers' Role in the Support of Patients Suffering from Multiple Sclerosis Treated with Subcutaneous Interferon Beta 1a.

Authors:  Cécile Donzé; Bruno Lenne; Anne-Sophie Jean Deleglise; Christian Kempf; Yasmine Bellili; Patrick Hautecoeur
Journal:  Mult Scler Int       Date:  2016-08-01
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