Literature DB >> 17068811

Through the viewfinder: Positive Exposure a year later.

Erica J Sutton1, Lauren Rosapep, Karen Ball, Megan Truitt, Barbara Biesecker, Rick Guidotti, Diane McLean.   

Abstract

Positive Exposure, a non-profit organization founded and directed by former fashion photographer Rick Guidotti and co-directed by psychiatrist Dr. Diane McLean, uses photography and video interviews to explore the lived experiences of people affected with genetic conditions. Positive Exposure challenges pervasive social biases and stereotypes about genetic variation and strives to broaden and enrich societal perceptions of human beauty and spirit. Presented here are the open-ended personal reflections completed by four individuals with craniofacial differences recruited from a support group, Inner Faces. These four case studies aim to relay the professional photo-shoot experiences of people who may be challenged by the stigma associated with craniofacial differences. Questions addressed issues of perceived self-esteem, stigma, hopefulness, and photography experiences. These personal reflections were gathered 1 year following participation in a Positive Exposure photo-shoot. Participants described the ways in which the photo-shoot has been a lasting and life-promoting experience. In addition, these individuals emphasize the integral and enduring role the photographer, Rick Guidotti, played in their personal awakening. Positive Exposure provided these individuals with renewed identification of both inner and outer sources of beauty. These four case studies suggest that Positive Exposure may serve as a sustainable intervention to bolster self-esteem and self-image. Published 2006 Wiley-Liss, Inc.

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Year:  2006        PMID: 17068811     DOI: 10.1002/ajmg.c.30113

Source DB:  PubMed          Journal:  Am J Med Genet C Semin Med Genet        ISSN: 1552-4868            Impact factor:   3.908


  3 in total

1.  Psychological and social factors in undergoing reconstructive surgery among individuals with craniofacial conditions: an exploratory study.

Authors:  Heather Bemmels; Barbara Biesecker; Johanna L Schmidt; Alyson Krokosky; Rick Guidotti; Erica J Sutton
Journal:  Cleft Palate Craniofac J       Date:  2012-02-08

2.  Stigmatization, culture and counseling a commentary on growing up and living with NF1: a UK-Bangladeshi case study - by Santi Rozario.

Authors:  Clara L Gaff; Angus Clarke
Journal:  J Genet Couns       Date:  2007-05-11       Impact factor: 2.537

3.  The art of coping with a craniofacial difference: helping others through "Positive Exposure".

Authors:  Johanna Loewenstein; Erica Sutton; Rick Guidotti; Kristin Shapiro; Karen Ball; Diane McLean; Barbara Biesecker
Journal:  Am J Med Genet A       Date:  2008-06-15       Impact factor: 2.802

  3 in total

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