Literature DB >> 17042466

Spinal cord injured persons' conceptions of hospital care, rehabilitation, and a new life situation.

Asa Sand1, Ingvar Karlberg, Margareta Kreuter.   

Abstract

BACKGROUND: The basic aim of spinal cord injury (SCI) rehabilitation is to help patients return to a life worth living. It is therefore important that the staff at spinal units and rehabilitation centres understand how the patients experience their rehabilitation and their adjustment process to the new situation. AIM: To describe SCI persons' experiences of their rehabilitation process.
METHOD: Nineteen SCI persons were interviewed. Data from the tape-recorded interviews were analysed according to a modified descriptive version of the phenomenographic analysis process.
RESULTS: Six categories that describe the informants' conceptions of their rehabilitation process emerged: access to information, participation in planning rehabilitation, emotional support, feelings of vulnerability, adjustment to a new life situation, and emotional consequences of the injury.
CONCLUSION: Straightforward information, participation in the planning of the rehabilitation programme and emotional support were important factors influencing the rehabilitation process after the SCI. Professionals working with SCI rehabilitation should make use of patients' experiences in order to develop better rehabilitation programmes that focus on the individual needs of the patient. People are individuals and failure to take this into account can impact negatively on quality of life and the effectiveness of the rehabilitation.

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Year:  2006        PMID: 17042466     DOI: 10.1080/11038120500542187

Source DB:  PubMed          Journal:  Scand J Occup Ther        ISSN: 1103-8128            Impact factor:   2.611


  12 in total

1.  The influence of clarification and threats on life situation: patients' experiences 1 year after TSCI.

Authors:  Bodil Bjørnshave Noe; Merete Bjerrum; Sanne Angel
Journal:  Spinal Cord Ser Cases       Date:  2017-04-06

Review 2.  The experience of patients with ABI and their families during the hospital stay: A systematic review of qualitative literature.

Authors:  Tolu Oyesanya
Journal:  Brain Inj       Date:  2017-01-05       Impact factor: 2.311

3.  Community needs of people living with spinal cord injury and their family.

Authors:  Line Beauregard; Andréanne Guindon; Luc Noreau; Hélène Lefebvre; Normand Boucher
Journal:  Top Spinal Cord Inj Rehabil       Date:  2012

4.  Who decides? A qualitative study on the decisional roles of patients, their caregivers and doctors on the method of bladder drainage after spinal cord injury.

Authors:  J P Engkasan; C J Ng; W Y Low
Journal:  Spinal Cord       Date:  2014-11-18       Impact factor: 2.772

5.  Spinal cord injury rehabilitation patient and physical therapist perspective: a pilot study.

Authors:  Martha M Sliwinski; Ryan Smith; Andrea Wood
Journal:  Spinal Cord Ser Cases       Date:  2016-04-07

6.  Towards personalized care for persons with spinal cord injury: a study on patients' perceptions.

Authors:  Lorenza Garrino; Natascia Curto; Rita Decorte; Nadia Felisi; Ebe Matta; Silvano Gregorino; M Vittoria Actis; Cecilia Marchisio; Roberto Carone
Journal:  J Spinal Cord Med       Date:  2011       Impact factor: 1.985

7.  Experiences With Navigating and Managing Information in the Community Following Spinal Cord Injury.

Authors:  Alyse Lennox; Belinda Gabbe; Andrew Nunn; Sandra Braaf
Journal:  Top Spinal Cord Inj Rehabil       Date:  2018-05-03

8.  Early Access to Vocational Rehabilitation for Inpatients with Spinal Cord Injury: A Qualitative Study of Patients' Perceptions.

Authors:  Kumaran Ramakrishnan; Deborah Johnston; Belinda Garth; Gregory Murphy; James Middleton; Ian Cameron
Journal:  Top Spinal Cord Inj Rehabil       Date:  2016

Review 9.  Physical therapy after spinal cord injury: a systematic review of treatments focused on participation.

Authors:  Natàlia Gómara-Toldrà; Martha Sliwinski; Marcel P Dijkers
Journal:  J Spinal Cord Med       Date:  2014-01-21       Impact factor: 1.985

10.  Access to community support workers during hospital admission for people with spinal cord injury: a pilot study.

Authors:  Joanne L Nunnerley; Rachelle A Martin; Matthew Aldridge; John A Bourke; Ian Simpson
Journal:  Spinal Cord Ser Cases       Date:  2021-01-19
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