Literature DB >> 17030772

Development and evaluation of a self-administered version of the ALSFRS-R.

J Montes1, G Levy, S Albert, P Kaufmann, R Buchsbaum, P H Gordon, H Mitsumoto.   

Abstract

We evaluated the reliability and sensitivity to change over time of a newly developed self-administered version of the ALS functional rating scale-revised (ALSFRS-R) in 60 consecutive patients from an ALS clinic. The self-administered ALSFRS-R showed excellent reliability (intraclass correlation = 0.93, 95% CI: 088 to 0.96) and similar sensitivity to change over time vs the standard evaluator-administered ALSFRS-R.

Entities:  

Mesh：

Year:  2006        PMID： 17030772     DOI： 10.1212/01.wnl.0000238505.22066.fc

Source DB:  PubMed          Journal:  Neurology        ISSN： 0028-3878            Impact factor:   9.910


  18 in total

1.  Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm.

Authors:  Paul Wicks; Timothy E Vaughan; Michael P Massagli; James Heywood
Journal:  Nat Biotechnol       Date:  2011-04-24       Impact factor: 54.908

2.  A cross-sectional analysis of clinical evaluation in 35 individuals with mutations of the valosin-containing protein gene.

Authors:  Jake Plewa; Abhilasha Surampalli; Marie Wencel; Merit Milad; Sandra Donkervoort; Vincent J Caiozzo; Namita Goyal; Tahseen Mozaffar; Virginia Kimonis
Journal:  Neuromuscul Disord       Date:  2018-06-27       Impact factor: 4.296

3.  National Study of Muscle Cramps in ALS in the USA.

Authors:  Helen E Stephens; Nanette C Joyce; Björn Oskarsson
Journal:  Amyotroph Lateral Scler Frontotemporal Degener       Date:  2016-12-15       Impact factor: 4.092

4.  New considerations in the design of clinical trials for amyotrophic lateral sclerosis.

Authors:  James D Berry; Merit E Cudkowicz
Journal:  Clin Investig (Lond)       Date:  2011-10

Review 5.  Considerations for Amyotrophic Lateral Sclerosis (ALS) Clinical Trial Design.

Authors:  Christina N Fournier
Journal:  Neurotherapeutics       Date:  2022-07-11       Impact factor: 6.088

6.  Validation of the German version of the extended ALS functional rating scale as a patient-reported outcome measure.

Authors:  Susanne Abdulla; Stefan Vielhaber; Sonja Körner; Judith Machts; Hans-Jochen Heinze; Reinhard Dengler; Susanne Petri
Journal:  J Neurol       Date:  2013-06-05       Impact factor: 4.849

7.  Tollgate-based progression pathways of ALS patients.

Authors:  Özden O Dalgıç; F Safa Erenay; Kalyan S Pasupathy; Osman Y Özaltın; Brian A Crum; Mustafa Y Sir
Journal:  J Neurol       Date:  2019-01-25       Impact factor: 4.849

8.  Online assessment of ALS functional rating scale compares well to in-clinic evaluation: a prospective trial.

Authors:  André Maier; Teresa Holm; Paul Wicks; Laura Steinfurth; Peter Linke; Christoph Münch; Robert Meyer; Thomas Meyer
Journal:  Amyotroph Lateral Scler       Date:  2012-02

9.  Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients' behavioral changes than physical disability: a comparative study.

Authors:  Patricia Lillo; Eneida Mioshi; John R Hodges
Journal:  BMC Neurol       Date:  2012-12-07       Impact factor: 2.474

10.  Do Generic Preference-Based Measures Accurately Capture Areas of Health-Related Quality of Life Important to Individuals with Amyotrophic Lateral Sclerosis: A Content Validation Study.

Authors:  Nicole Peters; Vanina Dal Bello-Haas; Tara Packham; Marvin Chum; Colleen O'Connell; Wendy S Johnston; Joy C MacDermid; John Turnbull; Jill Van Damme; Ayse Kuspinar
Journal:  Patient Relat Outcome Meas       Date:  2021-06-25
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