Literature DB >> 16922979

Independence/dependence--a contradictory relationship? Life with a chronic illness.

Charlotte Delmar1, Trine Bøje, Dorrit Dylmer, Lisbeth Forup, Christina Jakobsen, Majbritt Møller, Hanne Sønder, Birthe D Pedersen.   

Abstract

This study shows that self-responsibility and self-control are meaningful values in the activities and decisions of everyday life. Dignity and being respected as an individual are closely connected to being able to manage on one's own and being independent of others' help. The study also shows that including other people into one's life situation can be an important sign of self-management. However, the critical interpretation shows that it is the view of the human being which determines whether help from others and self-managing on one's own can be combined. With a relational view of the human being, i.e. the basic condition that people always enter into relations of dependence, there is no contradiction between independence and dependence. In contrast, an individualist, liberalist view of the human being promotes an attitude of blaming oneself with the potential for feelings of inadequacy and guilt. The study also shows that seeking out treatment in the alternative medical sector maintain a form of continued self-control and self-responsibility. The study concludes that the nurse must work to qualify her/his sensory-based, situationally determined attentiveness and her/his view of the human being, which will include directing her/his attention towards the patient's view of the human being, values and ways of relating to oneself and to one's choices. The research design is qualitative and takes a phenomenological-hermeneutic approach. The data are based on interviews with 18 chronically ill patients, divided into three groups of six patients diagnosed with 'type I' diabetes, colitis ulcerosa and patients with coronary occlusion in the rehabilitation phase. Regardless of the diagnosis, the objective of the interview study was to highlight themes in the patients' views of health and illness related to their chronic condition and the significance of these views have for their mastery of everyday life. The research method is inspired by Paul Ricoeur.

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Year:  2006        PMID: 16922979     DOI: 10.1111/j.1471-6712.2006.00403.x

Source DB:  PubMed          Journal:  Scand J Caring Sci        ISSN: 0283-9318


  16 in total

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Authors:  Charlotte Delmar
Journal:  Med Health Care Philos       Date:  2013-05

2.  The interplay between autonomy and dignity: summarizing patients voices.

Authors:  Charlotte Delmar
Journal:  Med Health Care Philos       Date:  2013-11

3.  Chronic Illness and Generativity in Late Life: A Case Study.

Authors:  Susan M Hannum; Helen K Black; Robert L Rubinstein; Kate de Medeiros
Journal:  Gerontologist       Date:  2017-04-01

4.  Care recipients' perceptions of activity-related life space and life satisfaction during and after geriatric rehabilitation.

Authors:  Anna Cristina Aberg
Journal:  Qual Life Res       Date:  2008-05       Impact factor: 4.147

5.  Contested Ownership of Disease and Ambulatory-Sensitive Emergency Department Visits for Type 2 Diabetes.

Authors:  Jennifer E Shearer; Carolyn H Jenkins; Gayenell S Magwood; Charlene A Pope
Journal:  Am J Med Sci       Date:  2016-04       Impact factor: 2.378

6.  Lived experiences of self-care among older, home-dwelling individuals identified to be at risk of undernutrition.

Authors:  Solveig T Tomstad; Ulrika Söderhamn; Geir Arild Espnes; Olle Söderhamn
Journal:  J Multidiscip Healthc       Date:  2012-12-10

7.  Patients' experiences of living with and receiving treatment for fibromyalgia syndrome: a qualitative study.

Authors:  Heidi K Lempp; Stephani L Hatch; Serene F Carville; Ernest H Choy
Journal:  BMC Musculoskelet Disord       Date:  2009-10-07       Impact factor: 2.362

8.  Patients' Experience of Attending a Binge Eating Group Program - Qualitative Evaluation of a Pilot Study.

Authors:  Kristine Rørtveit; Bodil Furnes PhD; Elin Dysvik PhD; Venke Ueland PhD
Journal:  SAGE Open Nurs       Date:  2021-06-30

9.  "Struggling for independence": the meaning of being an oldest old man in a rural area. Interpretation of oldest old men's narrations.

Authors:  Tove Mentsen Ness; Ove Hellzen; Ingela Enmarker
Journal:  Int J Qual Stud Health Well-being       Date:  2014-02-13

10.  Status of human dignity of adult patients admitted to hospitals of Tehran.

Authors:  Fariba Borhani; Abbas Abbaszadeh; Soolmaz Moosavi
Journal:  J Med Ethics Hist Med       Date:  2014-12-01
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