Literature DB >> 16895827

Do notions of risk inform patient choice? Lessons from a study of prenatal genetic counseling.

Linda M Hunt1, Heide Castañeda, Katherine B DE Voogd.   

Abstract

Risk modeling is an increasingly important part of clinical medicine; however, "risk status" is a complex notion, understood differently by patients and clinicians. Patients' ability to make informed choices about clinical procedures often requires that they interpret risk statistics, which may be difficult to understand and apply. In this article, which is based on a study of prenatal care in South Texas, we consider how notions of risk affect patient decisions about prenatal genetic testing. The term "risk" carries multiple meanings for clinicians and patients. These meanings may conflate concepts of danger and probability as well as muddle population risk and individual risk. We propose that failure to articulate the varied and contrasting meanings of risk held by clinicians and patients can undermine clinical communication and, thereby, hamper patients' ability to make autonomous, informed choices. Attending to these differences may prove useful in empowering patients to make truly informed decisions.

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Mesh:

Year:  2006        PMID: 16895827     DOI: 10.1080/01459740600829720

Source DB:  PubMed          Journal:  Med Anthropol        ISSN: 0145-9740


  8 in total

1.  Risk terminology in biobanking and genetic research: what's in a name?

Authors:  Gwendolyn P Quinn; Heide Castañeda; Tuya Pal; Janique L Rice; Cathy D Meade; Clement K Gwede
Journal:  Am J Med Genet A       Date:  2013-07-03       Impact factor: 2.802

2.  Racialized Risk in Clinical Care: Clinician Vigilance and Patient Responsibility.

Authors:  Hannah S Bell; Funmi Odumosu; Anna C Martinez-Hume; Heather A Howard; Linda M Hunt
Journal:  Med Anthropol       Date:  2018-06-18

3.  Realities of environmental toxicity and their ramifications for community engagement.

Authors:  Justin T Clapp; Jody A Roberts; Britt Dahlberg; Lee Sullivan Berry; Lisa M Jacobs; Edward A Emmett; Frances K Barg
Journal:  Soc Sci Med       Date:  2016-10-20       Impact factor: 4.634

4.  Negotiating desires and options: how mothers who carry the fragile X gene experience reproductive decisions.

Authors:  Kelly Amanda Raspberry; Debra Skinner
Journal:  Soc Sci Med       Date:  2011-02-03       Impact factor: 4.634

Review 5.  Latinx individuals' knowledge of, preferences for, and experiences with prenatal genetic testing: a scoping review.

Authors:  Natalie Grafft; Andrew A Dwyer; María Pineros-Leano
Journal:  Reprod Health       Date:  2022-06-06       Impact factor: 3.355

6.  The pursuit of preventive care for chronic illness: turning healthy people into chronic patients.

Authors:  Meta J Kreiner; Linda M Hunt
Journal:  Sociol Health Illn       Date:  2013-12-28

7.  Exploring the Role of Provider-Patient Communication in Women's Sexual Health and Pre-Exposure Prophylaxis Care in the Primary Care Settings in New York State of the United States.

Authors:  Chen Zhang; Kevin Fiscella; Yu Liu
Journal:  Int J Environ Res Public Health       Date:  2022-07-01       Impact factor: 4.614

8.  Are good intentions good enough? Informed consent without trained interpreters.

Authors:  Linda M Hunt; Katherine B de Voogd
Journal:  J Gen Intern Med       Date:  2007-03-02       Impact factor: 5.128

  8 in total

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