Literature DB >> 16874125

Quality of life for people with intellectual disabilities.

Marco Bertelli1, Ivan Brown.   

Abstract

PURPOSE OF REVIEW: As the quality of life for the mental health of people with intellectual disabilities has been identified as a comprehensive indicator of intervention efficacy, scientific interest around it is shifting from theoretical issues to the ways of measurement. Nevertheless, the daily assessment still awaits the addressing of the questions of what the essence of quality of life is, how it is really or effectively measurable, by whom and for what purpose it is done. RECENT
FINDINGS: The point well agreed upon is that the measurement should be based on both qualitative and quantitative variables from both subjective and objective positions. It should also be conducted through a comprehensive system that includes auto and hetero evaluations (if possible both by proxies and other external persons). Current instruments of assessment are too different from each other and refer to different levels of evaluation. This results in inappropriate applications to the assessment and care procedures.
SUMMARY: A need for more methodologically rigorous studies exists, which is tracked in terms of applicability to daily practice and content effectiveness. At both health policy and front-line staff levels, assessment should aim at mobilizing and revaluing resources that can help a person to embark on or to continue a life-span curriculum of life skills.

Entities:  

Mesh:

Year:  2006        PMID: 16874125     DOI: 10.1097/01.yco.0000238479.81528.9f

Source DB:  PubMed          Journal:  Curr Opin Psychiatry        ISSN: 0951-7367            Impact factor:   4.741


  4 in total

1.  The subjective well-being of individuals diagnosed with comorbid intellectual disability and attention deficit hyperactivity disorders.

Authors:  Oren Yurkevitch; Sagi Berslav; Tal Araten-Bergman
Journal:  Qual Life Res       Date:  2015-02-13       Impact factor: 4.147

2.  Children with autism: quality of life and parental concerns.

Authors:  Li-Ching Lee; Rebecca A Harrington; Brian B Louie; Craig J Newschaffer
Journal:  J Autism Dev Disord       Date:  2007-12-06

3.  Quality of Life Outcomes in a Community Cohort of Adults With an Intellectual Disability Using the Personal Outcome Scale.

Authors:  Tom Burke; Andrew Deffew; Owen Stafford; Caroline Docherty; Sandra Burke; Remco Mostert; Jos van Loon; Marco Lombardi; Marianne Vaughan; Robert Brickell; Mary Keogh; Wendy Mahon; David O'Halloran
Journal:  Front Rehabil Sci       Date:  2022-03-25

4.  Is it feasible to assess self-reported quality of life in individuals who are deaf and have intellectual disabilities?

Authors:  Johannes Fellinger; Magdalena Dall; Joachim Gerich; Maria Fellinger; Katharina Schossleitner; William Joseph Barbaresi; Daniel Holzinger
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2020-09-14       Impact factor: 4.328

  4 in total

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