Literature DB >> 16779150

Online communication and support for cancer patients: a relationship-centric design framework.

Jacob B Weiss1, Nancy M Lorenzi.   

Abstract

Dealing with a cancer diagnosis and cancer treatment involves communication among clinicians, patients, families, friends and others affected by the illness. The hypothesis of this research is that an informatics system can effectively support the communication needs of cancer patients and their informal caregivers. Two design frameworks for online cancer communication are defined and compared. One is centered primarily on the users' interpersonal relationships, and the other is centered on the clinical data and cancer information. Five types of clinical and supportive relationships were identified and supported by in-depth interviews with cancer patients and their informal caregivers. Focusing the design of an online cancer communication system around the interpersonal relationships of patients and families may be an important step towards designing more effective paradigms for online cancer care and support.

Entities:  

Mesh：

Year:  2005        PMID： 16779150      PMCID： PMC1560480     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN： 1559-4076


  10 in total

1.  Public standards and patients' control: how to keep electronic medical records accessible but private.

Authors:  K D Mandl; P Szolovits; I S Kohane
Journal:  BMJ       Date:  2001-02-03

2.  When conversation is better than computation.

Authors:  E Coiera
Journal:  J Am Med Inform Assoc       Date:  2000 May-Jun       Impact factor: 4.497

3.  CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved.

Authors:  David H Gustafson; Robert P Hawkins; Eric W Boberg; Fiona McTavish; Betta Owens; Meg Wise; Haile Berhe; Suzanne Pingree
Journal:  Int J Med Inform       Date:  2002-11-12       Impact factor: 4.046

Review 4.  Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions.

Authors:  Gunther Eysenbach; John Powell; Marina Englesakis; Carlos Rizo; Anita Stern
Journal:  BMJ       Date:  2004-05-15

Review 5.  Patient education in pain control.

Authors:  S Ward; S Hughes; H Donovan; R C Serlin
Journal:  Support Care Cancer       Date:  2001-05       Impact factor: 3.603

Review 6.  Family support in advanced cancer.

Authors:  B A Given; C W Given; S Kozachik
Journal:  CA Cancer J Clin       Date:  2001 Jul-Aug       Impact factor: 508.702

7.  The problems experienced by patients with cancer and their needs for palliative care.

Authors:  Bart H P Osse; Myrra J F J Vernooij-Dassen; Egbert Schadé; Richard P T M Grol
Journal:  Support Care Cancer       Date:  2005-02-09       Impact factor: 3.603

8.  The challenge of palliative care.

Authors:  Robert G Twycross
Journal:  Int J Clin Oncol       Date:  2002-08       Impact factor: 3.402

9.  Report of conference track 3: patient empowerment.

Authors:  Patti Brennan; Charles Safran
Journal:  Int J Med Inform       Date:  2003-03       Impact factor: 4.046

Review 10.  Online cancer support groups: a review of the research literature.

Authors:  Paula Klemm; Dyane Bunnell; Maureen Cullen; Rachna Soneji; Patricia Gibbons; Andrea Holecek
Journal:  Comput Inform Nurs       Date:  2003 May-Jun       Impact factor: 1.985
  10 in total
  10 in total

1.  Personal health information management: consumers' perspectives.

Authors:  Andrea Civan; Meredith M Skeels; Anna Stolyar; Wanda Pratt
Journal:  AMIA Annu Symp Proc       Date:  2006

Review 2.  Psychosocial interventions for patients and caregivers in the age of new communication technologies: opportunities and challenges in cancer care.

Authors:  Hoda Badr; Cindy L Carmack; Michael A Diefenbach
Journal:  J Health Commun       Date:  2015-01-28

3.  "I Love Fruit But I Can't Afford It": Using Participatory Action Research to Develop Community-Based Initiatives to Mitigate Challenges to Chronic Disease Management in an African American Community Living in Public Housing.

Authors:  Courtney Rogers; Joy Johnson; Brianne Nueslein; David Edmunds; Rupa S Valdez
Journal:  J Racial Ethn Health Disparities       Date:  2018-03-12

4.  Catalyzing Social Support for Breast Cancer Patients.

Authors:  Meredith M Skeels; Kenton T Unruh; Christopher Powell; Wanda Pratt
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2010-04

5.  Sharing is caring, but not error free: transparency of granular controls for sharing personal health information in social networks.

Authors:  Andrea Hartzler; Meredith M Skeels; Marlee Mukai; Christopher Powell; Predrag Klasnja; Wanda Pratt
Journal:  AMIA Annu Symp Proc       Date:  2011-10-22

6.  Interface design for patient-caregiver integrated network.

Authors:  Jacob B Weiss; Nancy M Lorenzi
Journal:  AMIA Annu Symp Proc       Date:  2006

7.  Recommendations for the design, implementation and evaluation of social support in online communities, networks, and groups.

Authors:  Jacob B Weiss; Eta S Berner; Kevin B Johnson; Dario A Giuse; Barbara A Murphy; Nancy M Lorenzi
Journal:  J Biomed Inform       Date:  2013-04-11       Impact factor: 6.317

8.  From loquacious to reticent: understanding patient health information communication to guide consumer health IT design.

Authors:  Rupa S Valdez; Thomas M Guterbock; Kara Fitzgibbon; Ishan C Williams; Claire A Wellbeloved-Stone; Jaime E Bears; Hannah K Menefee
Journal:  J Am Med Inform Assoc       Date:  2017-07-01       Impact factor: 4.497

9.  "It's Not Just Technology, It's People": Constructing a Conceptual Model of Shared Health Informatics for Tracking in Chronic Illness Management.

Authors:  Lisa M Vizer; Jordan Eschler; Bon Mi Koo; James Ralston; Wanda Pratt; Sean Munson
Journal:  J Med Internet Res       Date:  2019-04-29       Impact factor: 5.428

10.  Mechanisms of Communicating Health Information Through Facebook: Implications for Consumer Health Information Technology Design.

Authors:  Hannah K Menefee; Morgan J Thompson; Thomas M Guterbock; Ishan C Williams; Rupa S Valdez
Journal:  J Med Internet Res       Date:  2016-08-11       Impact factor: 5.428
  10 in total

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