Literature DB >> 16754440

Accidental communities: race, emergency medicine, and the problem of polyheme.

Karla F C Holloway1.   

Abstract

This article focuses on emergency medical care in black urban populations, suggesting that the classification of a "community" within clinical trial language is problematic. The article references a cultural history of black Americans with pre-hospital emergency medical treatment as relevant to contemporary emergency medicine paradigms. Part I explores a relationship between "autonomy" and "community." The idea of community emerges as a displacement for the ethical principle of autonomy precisely at the moment that institutionalized medicine focuses on diversity. Part II examines a clinical trial for the blood substitute PolyHeme (Northfield Laboratories, Inc., Evanston, IL). It illustrates the ways in which bias in research paradigms and Institutional Review Board decisions attach to the notion and utility of the language of "community." The conclusion's contemporary anecdote makes apparent the vitality of the issues of prehospital emergency medical care and the ways in which decisions and practices fall too easily into a narrative of culturally biased treatment.

Mesh:

Substances:

Year:  2006        PMID: 16754440     DOI: 10.1080/15265160600685556

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


  8 in total

1.  Redressing past wrongs: changing the common rule to increase minority voices in research.

Authors:  William C Rencher; Leslie E Wolf
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

Review 2.  Within and beyond the communal turn to informed consent in industry-sponsored pharmacogenetics research: merits and challenges of community advisory boards.

Authors:  Hojjat Soofi; Evert van Leeuwen
Journal:  J Community Genet       Date:  2016-08-05

3.  Patients' perspectives of enrollment in research without consent: the patients' experiences in emergency research-progesterone for the treatment of traumatic brain injury study.

Authors:  Neal W Dickert; Victoria M Scicluna; Jill M Baren; Michelle H Biros; Ross J Fleischman; Prasanthi R Govindarajan; Elizabeth B Jones; Arthur M Pancioli; David W Wright; Rebecca D Pentz
Journal:  Crit Care Med       Date:  2015-03       Impact factor: 7.598

4.  Is the enrollment of racial and ethnic minorities in research in the emergency setting equitable?

Authors:  Jeremy Sugarman; Colleen Sitlani; Dug Andrusiek; Tom Aufderheide; Eileen M Bulger; Daniel P Davis; David B Hoyt; Ahamed Idris; Jeffrey D Kerby; Judy Powell; Terri Schmidt; Arthur S Slutsky; George Sopko; Shannon Stephens; Carolyn Williams; Graham Nichol
Journal:  Resuscitation       Date:  2009-04-22       Impact factor: 5.262

5.  Consulting communities when patients cannot consent: a multicenter study of community consultation for research in emergency settings.

Authors:  Neal W Dickert; Victoria A Mah; Michelle H Biros; Deneil M Harney; Robert Silbergleit; Jeremy Sugarman; Emir Veledar; Kevin P Weinfurt; David W Wright; Rebecca D Pentz
Journal:  Crit Care Med       Date:  2014-02       Impact factor: 7.598

Review 6.  Meeting unique requirements: Community consultation and public disclosure for research in emergency setting using exception from informed consent.

Authors:  Neal W Dickert; Kathleen Metz; Michael D Fetters; Adrianne N Haggins; Deneil K Harney; Candace D Speight; Robert Silbergleit
Journal:  Acad Emerg Med       Date:  2021-05-26       Impact factor: 5.221

7.  Blood substitutes--the polyheme trials.

Authors:  Sameer S Apte
Journal:  Mcgill J Med       Date:  2008-01

Review 8.  Exceptions to the rule of informed consent for research with an intervention.

Authors:  Susanne Rebers; Neil K Aaronson; Flora E van Leeuwen; Marjanka K Schmidt
Journal:  BMC Med Ethics       Date:  2016-02-06       Impact factor: 2.652

  8 in total

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