Literature DB >> 16754431

Promoting the participation of minorities in research.

Mandy Garber1, Robert M Arnold.   

Abstract

The current policy of the National Institute of Health designed to increase the participation of women and minorities is radically different from previous policies designed to protect minorities from abuses in research studies. The principal arguments to support this policy are twofold: 1) Increased representation of minorities and women in research would increase the generalizability of research data and allow for valid analyses of differences in subpopulations; and 2) being in a clinical research study is advantageous to participants regardless of the final research study results. It remains unclear whether minorities find these arguments compelling. Instead of telling minorities that participation in research is good for them, the research community should focus on understanding what minority communities want from clinical research and then tailoring the message to meet this need. Persuasive arguments to promote long-term increased representation of minorities in clinical research must come from within minority communities.

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Year:  2006        PMID: 16754431     DOI: 10.1080/15265160600686331

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


  6 in total

1.  Racial Differences Among Factors Associated with Participation in Clinical Research Trials.

Authors:  Anita Kurt; Lauren Semler; Jeanne L Jacoby; Melanie B Johnson; Beth A Careyva; Brian Stello; Timothy Friel; Mark C Knouse; Hope Kincaid; John C Smulian
Journal:  J Racial Ethn Health Disparities       Date:  2016-09-08

2.  New English and Spanish social health measures will facilitate evaluating health determinants.

Authors:  Elizabeth A Hahn; Darren A DeWalt; Rita K Bode; Sofia F Garcia; Robert F DeVellis; Helena Correia; David Cella
Journal:  Health Psychol       Date:  2014-01-20       Impact factor: 4.267

3.  Research Professionals' Perspectives, Barriers, and Recommendations Regarding Minority Participation in Clinical Trials.

Authors:  Anita Kurt; Lauren Semler; Matthew Meyers; Bernadette G Porter; Jeanne L Jacoby; Brian Stello
Journal:  J Racial Ethn Health Disparities       Date:  2016-12-21

4.  A New Mechanism for Tracking Publicly Available Study Volunteer Demographics.

Authors:  Rachael Zuckerman; Kenneth Getz; Kenneth Kaitin
Journal:  Drug Inf J       Date:  2011-01-01

5.  Recruiting Chinese- and Korean-Americans in Cancer Survivorship Research: Challenges and Lessons Learned.

Authors:  Jung-Won Lim; Min-So Paek
Journal:  J Cancer Educ       Date:  2016-03       Impact factor: 2.037

6.  Beliefs of women's risk as research subjects: a four-city study examining differences by sex and by race/ethnicity.

Authors:  Stefanie L Russell; Ralph V Katz; Nancy R Kressin; B Lee Green; Min Qi Wang; Cristina Claudio; Krassimira Tzvetkova
Journal:  J Womens Health (Larchmt)       Date:  2009-02       Impact factor: 2.681

  6 in total

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