Literature DB >> 16719751

Practical challenges of conducting research into rheumatic fever in remote Aboriginal communities.

Malcolm I McDonald1, Norma Benger, Alex Brown, Bart J Currie, Jonathan R Carapetis.   

Abstract

Before embarking on an epidemiological study of acute rheumatic fever in remote Aboriginal communities, researchers engaged in the processes of community consultation, consent and household enrollment. Community expectations and time constraints are not necessarily those of the funding bodies, and a considerable investment of time and local engagement was required before the project proceeded with local support. The remoteness of the communities, harsh climate and limited infrastructure made working conditions difficult. Nevertheless, the study was completed and the results are being returned to the local councils and households. The research team continues to maintain its relationship with each study community.

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Year:  2006        PMID: 16719751     DOI: 10.5694/j.1326-5377.2006.tb00346.x

Source DB:  PubMed          Journal:  Med J Aust        ISSN: 0025-729X            Impact factor:   7.738


  3 in total

Review 1.  Seeking consent for research with indigenous communities: a systematic review.

Authors:  Emily F M Fitzpatrick; Alexandra L C Martiniuk; Heather D'Antoine; June Oscar; Maureen Carter; Elizabeth J Elliott
Journal:  BMC Med Ethics       Date:  2016-10-22       Impact factor: 2.652

2.  Concerns for efficacy of a 30-valent M-protein-based Streptococcus pyogenes vaccine in regions with high rates of rheumatic heart disease.

Authors:  Philip M Giffard; Steven Y C Tong; Deborah C Holt; Anna P Ralph; Bart J Currie
Journal:  PLoS Negl Trop Dis       Date:  2019-07-03

3.  The Kalgoorlie Otitis Media Research Project: rationale, methods, population characteristics and ethical considerations.

Authors:  Deborah Lehmann; Ashwini Arumugaswamy; Dimity Elsbury; Janine Finucane; Annette Stokes; Ruth Monck; Christine Jeffries-Stokes; Daniel McAullay; Harvey Coates; Fiona J Stanley
Journal:  Paediatr Perinat Epidemiol       Date:  2008-01       Impact factor: 3.980

  3 in total

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