Literature DB >> 16705007

Palliative care for prenatally diagnosed lethal fetal abnormality.

A C G Breeze1, C C Lees, A Kumar, H H Missfelder-Lobos, E M Murdoch.   

Abstract

Diagnosis of lethal fetal abnormality raises challenging decisions for parents and clinicians. Most parents opt for termination, which may include feticide. Advances in imaging seem unlikely to lead to earlier diagnoses. Perinatal palliative care offers an alternative. Parental decision making and the clinical aspects of perinatal palliative care were studied after a prenatal diagnosis of lethal fetal abnormality in 20 pregnancies. 40% of parents chose to continue the pregnancy and pursue perinatal palliative care. Six of these eight babies were liveborn and lived for between 1(1/2) h and 3 weeks.

Mesh:

Year:  2006        PMID: 16705007      PMCID: PMC2675307          DOI: 10.1136/adc.2005.092122

Source DB:  PubMed          Journal:  Arch Dis Child Fetal Neonatal Ed        ISSN: 1359-2998            Impact factor:   5.747


  3 in total

1.  Continuing with pregnancy after a diagnosis of lethal abnormality: experience of five couples and recommendations for management.

Authors:  L S Chitty; C A Barnes; C Berry
Journal:  BMJ       Date:  1996-08-24

2.  Neonatal death following termination of pregnancy.

Authors:  Shantala Vadeyar; Tracey A Johnston; Mary Sidebotham; Jean Sands
Journal:  BJOG       Date:  2005-08       Impact factor: 6.531

3.  Perinatal hospice. Comprehensive care for the family of the fetus with a lethal condition.

Authors:  Byron C Calhoun; Peter Napolitano; Melissa Terry; Carie Bussey; Nathan J Hoeldtke
Journal:  J Reprod Med       Date:  2003-05       Impact factor: 0.142

  3 in total
  16 in total

1.  Neonatal outcomes of fetuses diagnosed with life-limiting conditions when individualized comfort measures are proposed.

Authors:  E Parravicini; J M Lorenz
Journal:  J Perinatol       Date:  2014-03-20       Impact factor: 2.521

Review 2.  Support for mothers, fathers and families after perinatal death.

Authors:  Laura Koopmans; Trish Wilson; Joanne Cacciatore; Vicki Flenady
Journal:  Cochrane Database Syst Rev       Date:  2013-06-19

3.  Pediatric palliative care in Canada in 2012: a cross-sectional descriptive study.

Authors:  Kimberley Widger; Dawn Davies; Adam Rapoport; Christina Vadeboncoeur; Stephen Liben; Amrita Sarpal; Simone Stenekes; Claude Cyr; Lysanne Daoust; Marie-Claude Grégoire; Marli Robertson; Heather Hodgson-Viden; Julie Laflamme; Harold Siden
Journal:  CMAJ Open       Date:  2016-10-11

4.  "Have no regrets:" Parents' experiences and developmental tasks in pregnancy with a lethal fetal diagnosis.

Authors:  Denise Côté-Arsenault; Erin Denney-Koelsch
Journal:  Soc Sci Med       Date:  2016-02-26       Impact factor: 4.634

5.  Experiences in palliative home care of infants with life-limiting conditions.

Authors:  Michaela Kuhlen; Jessica I Höll; Hemmen Sabir; Arndt Borkhardt; Gisela Janßen
Journal:  Eur J Pediatr       Date:  2015-09-28       Impact factor: 3.183

6.  Clinical features and practice patterns of gastroschisis: a retrospective analysis using a Japanese national inpatient database.

Authors:  Michimasa Fujiogi; Nobuaki Michihata; Hiroki Matsui; Kiyohide Fushimi; Hideo Yasunaga; Jun Fujishiro
Journal:  Pediatr Surg Int       Date:  2018-05-16       Impact factor: 1.827

7.  Acknowledged Dependence and the Virtues of Perinatal Hospice.

Authors:  Aaron D Cobb
Journal:  J Med Philos       Date:  2015-12-08

8.  Experiences from the first 10 years of a perinatal palliative care program: A retrospective chart review.

Authors:  Megan E Doherty; Liam Power; Robin Williams; Nahal Stoppels; Lynn Grandmaison Dumond
Journal:  Paediatr Child Health       Date:  2019-10-18       Impact factor: 2.253

9.  Termination of Pregnancy for Fetal Anomalies: A Qualitative Study of the Informational and Educational Needs of Women.

Authors:  Bahareh Kamranpour; Mahnaz Noroozi; Masoud Bahrami
Journal:  Iran J Nurs Midwifery Res       Date:  2021-03-05

Review 10.  The model of Palliative Care in the perinatal setting: a review of the literature.

Authors:  Albert Balaguer; Ana Martín-Ancel; Darío Ortigoza-Escobar; Joaquín Escribano; Josep Argemi
Journal:  BMC Pediatr       Date:  2012-03-12       Impact factor: 2.125

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