Literature DB >> 16679956

Issues in genetic testing of children.

John G Twomey1.   

Abstract

Commentary about the ethical issues involved in the genetic testing in children (GTIC) has centered around beliefs that early testing of children when no medical benefits are anticipated should be discouraged. This article discusses the types of GTIC and the contexts of possible testing scenarios, and provides a review of the current research into the effects of such testing on children and their families. As data cannot support either substantive benefits or harms accrued after GTIC, it is recommended that the traditional ethical analysis based on principled theory be augmented by theories that reflect a family-centered ethic.

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Year:  2006        PMID: 16679956     DOI: 10.1097/00005721-200605000-00006

Source DB:  PubMed          Journal:  MCN Am J Matern Child Nurs        ISSN: 0361-929X            Impact factor:   1.412


  4 in total

1.  Prevalence of genetic testing in CHARGE syndrome.

Authors:  Timothy S Hartshorne; Kasee K Stratton; Conny M A van Ravenswaaij-Arts
Journal:  J Genet Couns       Date:  2010-09-28       Impact factor: 2.537

2.  Introduction to the special issue: psychological aspects of genomics and child health.

Authors:  Kenneth P Tercyak
Journal:  J Pediatr Psychol       Date:  2008-12-06

3.  "Both Sides of the Wheelchair": The Views of Individuals with, and Parents of Individuals with Friedreich Ataxia Regarding Pre-symptomatic Testing of Minors.

Authors:  Georgia C Lowe; Louise A Corben; Rony E Duncan; Grace Yoon; Martin B Delatycki
Journal:  J Genet Couns       Date:  2015-01-17       Impact factor: 2.537

4.  When the cystic fibrosis label does not fit: a modified uncertainty theory.

Authors:  Audrey Tluczek; Anne Chevalier McKechnie; Patrice A Lynam
Journal:  Qual Health Res       Date:  2010-02
  4 in total

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