Literature DB >> 16676343

Enacting a theory of caring to recruit and retain vulnerable participants for sensitive research.

Karen Kavanaugh1, Teresa T Moro, Teresa Savage, Ramkrishna Mehendale.   

Abstract

The recruitment and retention of research participants always presents challenges to researchers. This process is made more complicated when the research being undertaken is socially sensitive and the populations of interest are considered vulnerable. The purpose of this article is to illustrate how Swanson's middle-range theory of caring can be used as a framework for recruitment and retention for studies on sensitive topics that involve vulnerable participants. We provide an overview of the theory as well as illustrations from three separate studies that involved in-depth interviews with vulnerable participants. These studies included parents who had either experienced the death of their infant or were involved in life support decisions because of potentially giving birth to an extremely premature infant (22-25 weeks gestation).

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Year:  2006        PMID: 16676343      PMCID: PMC2818299          DOI: 10.1002/nur.20134

Source DB:  PubMed          Journal:  Res Nurs Health        ISSN: 0160-6891            Impact factor:   2.228


  26 in total

1.  Researching sensitive issues and ethnicity: lessons from sexual health.

Authors:  Gillian Elam; Kevin A Fenton
Journal:  Ethn Health       Date:  2003-02       Impact factor: 2.772

2.  Obtaining voluntary consent for research in desperately ill patients.

Authors:  Charles L Bosk
Journal:  Med Care       Date:  2002-09       Impact factor: 2.983

3.  Neonatal research: the parental perspective.

Authors:  B J Stenson; J-C Becher; N McIntosh
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2004-07       Impact factor: 5.747

4.  Empirical development of a middle range theory of caring.

Authors:  K M Swanson
Journal:  Nurs Res       Date:  1991 May-Jun       Impact factor: 2.381

5.  Parental perceptions of caring following perinatal bereavement.

Authors:  C M Lemmer
Journal:  West J Nurs Res       Date:  1991-08       Impact factor: 1.967

6.  Ethical considerations in qualitative research.

Authors:  P L Munhall
Journal:  West J Nurs Res       Date:  1988-04       Impact factor: 1.967

7.  Issues in conducting research with vulnerable families.

Authors:  A S Demi; N A Warren
Journal:  West J Nurs Res       Date:  1995-04       Impact factor: 1.967

8.  Nursing as informed caring for the well-being of others.

Authors:  K M Swanson
Journal:  Image J Nurs Sch       Date:  1993

9.  Unfinished business: interviewing family members of critically ill patients.

Authors:  G Burr
Journal:  Nurs Inq       Date:  1996-09       Impact factor: 2.393

10.  Bereaved parents' experience of research participation.

Authors:  Kari Dyregrov
Journal:  Soc Sci Med       Date:  2004-01       Impact factor: 4.634

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  13 in total

1.  Challenges and strategies for recruitment and retention of vulnerable research participants: promoting the benefits of participation.

Authors:  Robin Gemmill; Anna Cathy Williams; Liz Cooke; Marcia Grant
Journal:  Appl Nurs Res       Date:  2010-04-09       Impact factor: 2.257

2.  Reasons Why Pregnant Women Participate in Ultrasound Research Involving Transvaginal Scans.

Authors:  Barbara T Meagher; Marissa R Campos; Patrick Thornton; Carrie Klima; Tara A Peters; Josefin Hallberg; Emma Ulfhager; William D O'Brien; Barbara L McFarlin
Journal:  J Ultrasound Med       Date:  2020-02-19       Impact factor: 2.153

3.  Development of an informational web site for recruiting research participants: process, implementation, and evaluation.

Authors:  Patricia E Hershberger; Karen Kavanaugh; Rebekah Hamilton; Susan C Klock; Lisa Merry; Ellen Olshansky; Penny F Pierce
Journal:  Comput Inform Nurs       Date:  2011-10       Impact factor: 1.985

4.  Conducting research with end-of-life populations: overcoming recruitment challenges when working with clinical agencies.

Authors:  Dena J Fischer; Sandy C Burgener; Karen Kavanaugh; Catherine Ryan; Gail Keenan
Journal:  Appl Nurs Res       Date:  2011-06-22       Impact factor: 2.257

5.  Prospective parents' perspectives on antenatal decision making for the anticipated birth of a periviable infant.

Authors:  Brownsyne Tucker Edmonds; Teresa A Savage; Robert E Kimura; Sarah J Kilpatrick; Miriam Kuppermann; William Grobman; Karen Kavanaugh
Journal:  J Matern Fetal Neonatal Med       Date:  2017-11-05

6.  Cognitive interviewing methods for questionnaire pre-testing in homeless persons with mental disorders.

Authors:  Carol E Adair; Anna C Holland; Michelle L Patterson; Kate S Mason; Paula N Goering; Stephen W Hwang
Journal:  J Urban Health       Date:  2012-02       Impact factor: 3.671

7.  Caring as a Facilitator of Sensitive Research Studies with Immigrant Latino Families.

Authors:  Yui Matsuda; Maria Martinez; Linda S Beeber
Journal:  Int J Hum Caring       Date:  2017

8.  Parent decision making for life support for extremely premature infants: from the prenatal through end-of-life period.

Authors:  Teresa T Moro; Karen Kavanaugh; Teresa A Savage; Maria R Reyes; Robert E Kimura; Rama Bhat
Journal:  J Perinat Neonatal Nurs       Date:  2011 Jan-Mar       Impact factor: 1.638

9.  How nurses assist parents regarding life support decisions for extremely premature infants.

Authors:  Karen Kavanaugh; Teresa T Moro; Teresa A Savage
Journal:  J Obstet Gynecol Neonatal Nurs       Date:  2010 Mar-Apr

10.  Supporting parents' decision making surrounding the anticipated birth of an extremely premature infant.

Authors:  Karen Kavanaugh; Teresa T Moro; Teresa A Savage; Maria Reyes; Marguerite Wydra
Journal:  J Perinat Neonatal Nurs       Date:  2009 Apr-Jun       Impact factor: 1.638

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