Literature DB >> 16612063

Hemoglobinopathy control program in Turkey.

Duran Canatan1, M Rifat Kose, Munip Ustundag, Dilek Haznedaroglu, Sema Ozbas.   

Abstract

Hemoglobinopathies are a very important health problem in Turkey. To date many studies have been performed but there has been no national hemoglobinopathy control program (HCP). After the Turkish National Hemoglobinopathy Council (TNHC) was created all centers, foundations, and associations were combined into one organization controlled by the Ministry of Health (MOH). The MOH and the TNHC have started to register the results of the screening of 377,339 healthy subjects from 16 different cities and the recorded average frequency of the beta-thalassemia trait was 4.3%. The highest prevalence of thebeta-thalassemia trait (13.1%) was found in the Antalya region and of the HbS trait (10%) in the Cukurova region. Next, written regulations for the Fight against Hereditary Blood Disease were published especially for preventing and treating hemoglobinopathies. The MOH and the TNHC selected 33 provinces situated in the Thrace, Marmara, Aegean, Mediterranean and South Eastern regions with a high birth prevalence of severe hemoglobinopathies. The hemoglobinopathy scientific committee was set up, a guidebook was published and a national HCP was started in these high-risk provinces.

Entities:  

Mesh:

Year:  2006        PMID: 16612063     DOI: 10.1159/000091493

Source DB:  PubMed          Journal:  Community Genet        ISSN: 1422-2795


  18 in total

Review 1.  Carrier screening for beta-thalassaemia: a review of international practice.

Authors:  Nicole E Cousens; Clara L Gaff; Sylvia A Metcalfe; Martin B Delatycki
Journal:  Eur J Hum Genet       Date:  2010-06-23       Impact factor: 4.246

2.  Craniofacial Characteristics of Thalassemia Major Patients.

Authors:  Sacide Karakas; Ayfer Metin Tellioglu; Mehmet Bilgin; Imran Kurt Omurlu; Sercin Caliskan; Salih Coskun
Journal:  Eurasian J Med       Date:  2016-10

3.  Demographic characteristics of SMA type 1 patients at a tertiary center in Turkey.

Authors:  Barış Ekici; Betül Bozkurt; Burak Tatlı; Mine Calışkan; Nur Aydınlı; Meral Ozmen
Journal:  Eur J Pediatr       Date:  2011-10-21       Impact factor: 3.183

4.  Hemoglobinopathy awareness among high school students in Antakya (Antioch), Turkey.

Authors:  Nazan Savas; Ebru Turhan; Tacettin Inandi; Hasan Kaya
Journal:  Int J Hematol       Date:  2010-03-06       Impact factor: 2.490

5.  Anxiety, depression and quality of life in patients with beta thalassemia major and their caregivers.

Authors:  Erhan Yengil; Can Acipayam; Mehmet Hanifi Kokacya; Faruk Kurhan; Gonul Oktay; Cahit Ozer
Journal:  Int J Clin Exp Med       Date:  2014-08-15

6.  Genetic screening services provided in Turkey.

Authors:  Yurdagül Erdem; Fulya Tekşen
Journal:  J Genet Couns       Date:  2013-09-18       Impact factor: 2.537

7.  A new donor system for the patients with thalassemia: "Blood mother and blood father".

Authors:  Duran Canatan; Ahmet Ozsancak
Journal:  Asian J Transfus Sci       Date:  2010-07

Review 8.  The prevention of thalassemia.

Authors:  Antonio Cao; Yuet Wai Kan
Journal:  Cold Spring Harb Perspect Med       Date:  2013-02-01       Impact factor: 6.915

9.  Evaluation of married haemoglobinopathic carrier couples for prevention of haemoglobinopathic births.

Authors:  Ersin Nazlıcan; Ozlem Celenk; Bayram Kerkez; Hakan Demirhindi; Muhsin Akbaba; Mustafa Kiremitçi
Journal:  Balkan Med J       Date:  2013-09-27       Impact factor: 2.021

10.  The Spectrum of Beta-Thalassemia Mutations in Syrian Refugees and Turkish Citizens.

Authors:  Ahmet Kursad Gunes; Hilmi Erdem Gozden
Journal:  Cureus       Date:  2021-06-04
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