Literature DB >> 16594225

A conceptual model and key variables for guiding supportive interventions for family caregivers of people receiving palliative care.

Peter Hudson1.   

Abstract

According to the World Health Organization, the patient and family should be viewed as the "unit of care" when palliative care is required. Therefore family caregivers should receive optimal supportive care from health professionals. However, the impact of supporting a dying relative is frequently described as having negative physical and psychosocial sequalae. Furthermore, family caregivers consistently report unmet needs and there has been a dearth of rigorous supportive interventions published. In addition, comprehensive conceptual frameworks to navigate the family caregiver experience and guide intervention development are lacking. This article draws on Lazarus and Folkman's seminal work on the transactional stress and coping framework to present a conceptual model specific to family caregivers of patients receiving palliative care. A comprehensive account of key variables to aid understanding of the family caregiver experience and intervention design is provided.

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Year:  2003        PMID: 16594225     DOI: 10.1017/s1478951503030426

Source DB:  PubMed          Journal:  Palliat Support Care        ISSN: 1478-9515


  19 in total

1.  Feasibility Testing and Refinement of a Supportive Educational Intervention for Carers of Patients with High-Grade Glioma - a Pilot Study.

Authors:  Georgia K B Halkett; Elizabeth A Lobb; Lisa Miller; Thérèse Shaw; Rachael Moorin; Anne Long; Anne King; Jenny Clarke; Stephanie Fewster; Anna K Nowak
Journal:  J Cancer Educ       Date:  2018-10       Impact factor: 2.037

2.  Mental and physical health correlates among family caregivers of patients with newly-diagnosed incurable cancer: a hierarchical linear regression analysis.

Authors:  Kelly M Shaffer; Jamie M Jacobs; Ryan D Nipp; Alaina Carr; Vicki A Jackson; Elyse R Park; William F Pirl; Areej El-Jawahri; Emily R Gallagher; Joseph A Greer; Jennifer S Temel
Journal:  Support Care Cancer       Date:  2016-11-19       Impact factor: 3.603

3.  Determinants of access to pediatric hospice care: A conceptual model.

Authors:  Lisa C Lindley
Journal:  J Hosp Palliat Nurs       Date:  2015-04       Impact factor: 1.918

Review 4.  Emerging models for mobilizing family support for chronic disease management: a structured review.

Authors:  Ann-Marie Rosland; John D Piette
Journal:  Chronic Illn       Date:  2010-03

5.  Identifying the prevalence of unmet supportive care needs among family caregivers of cancer patients: an Italian investigation on home palliative care setting.

Authors:  Veronica Zavagli; Melania Raccichini; Rita Ostan; Giacomo Ercolani; Luca Franchini; Silvia Varani; Raffaella Pannuti
Journal:  Support Care Cancer       Date:  2022-01-09       Impact factor: 3.603

6.  Feasibility and preliminary effects of an intervention targeting schema development for caregivers of newly admitted hospice patients.

Authors:  Kathryn B Lindstrom; Bernadette Mazurek Melnyk
Journal:  J Palliat Med       Date:  2013-02-05       Impact factor: 2.947

7.  Preparedness for Death: How Caregivers of Elders With Dementia Define and Perceive its Value.

Authors:  Cynthia A Hovland-Scafe; Betty J Kramer
Journal:  Gerontologist       Date:  2017-11-10

Review 8.  Improving well-being in caregivers of terminally ill patients. Making the case for patient suffering as a focus for intervention research.

Authors:  Randy S Hebert; Robert M Arnold; Richard Schulz
Journal:  J Pain Symptom Manage       Date:  2007-07-05       Impact factor: 3.612

9.  An Adapted Conceptual Model Integrating Palliative Care in Serious Illness and Multiple Chronic Conditions.

Authors:  Komal Patel Murali; John D Merriman; Gary Yu; Allison Vorderstrasse; Amy Kelley; Abraham A Brody
Journal:  Am J Hosp Palliat Care       Date:  2020-06-08       Impact factor: 2.500

10.  Intensity of Predeath Grief and Postdeath Grief of Family Caregivers in Palliative Care in Relation to Preparedness for Caregiving, Caregiver Burden, and Social Support.

Authors:  Lena Axelsson; Anette Alvariza; Maja Holm; Kristofer Årestedt
Journal:  Palliat Med Rep       Date:  2020-09-09
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