Literature DB >> 16502339

Care of the self and patient participation in genetic discourse: a Foucauldian reading of the surgeon general's "my family health portrait" program.

Benjamin R Bates1.   

Abstract

Critics of genetic discourse are concerned that deterministic and discriminatory views of genetics are increasingly becoming adopted. These views argue that current genetic discourse becomes a source of power whereby powerful institutions harm people with so-called "bad" genes. This essay argues that current analyses of the power of genetics discourse are grounded in an improper reading that disempowers patients. Deploying Michel Foucault's concept "care of the self," this essay claims that genetics discourse is better understood as a way that patients take on power through rhetoric rather than a force that has power over patients. Through a close reading of the "My Family Health Portrait" program, this paper argues that patients experience a process of "subjection" wherein they become agents of and objects of genetics discourse both. This alternative mode of analyzing the power of genetics discourse has implications for our collective understanding of the operations of the care of the self and the uses of genetic information that we propose.

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Year:  2005        PMID: 16502339     DOI: 10.1007/s10897-005-4845-5

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  41 in total

1.  Genetic optimism: framing genes and mental illness in the news.

Authors:  P Conrad
Journal:  Cult Med Psychiatry       Date:  2001-06

2.  Kindly technicians: hospital administrators immediately before the NHS.

Authors:  M Learmonth
Journal:  J Manag Med       Date:  1998

3.  Genetics and privacy.

Authors:  Joanne L Hustead; Janlori Goldman
Journal:  Am J Law Med       Date:  2002

4.  Metaphors in behavioral genetics.

Authors:  A Nordgren
Journal:  Theor Med Bioeth       Date:  2003

5.  Postmodernism for animal scientists.

Authors:  K K Schillo; P B Thompson
Journal:  J Anim Sci       Date:  2003-12       Impact factor: 3.159

6.  The gaps in the gaze in South African hospitals.

Authors:  Diana Gibson
Journal:  Soc Sci Med       Date:  2004-11       Impact factor: 4.634

7.  A testimony to Muzil: Hervé Guibert, Foucault, and the medical gaze.

Authors:  Joanne Rendell
Journal:  J Med Humanit       Date:  2004

8.  Public culture and public understanding of genetics: a focus group study.

Authors:  Benjamin R Bates
Journal:  Public Underst Sci       Date:  2005-01

9.  Foucault's strategy: knowledge, power, and the specificity of truth.

Authors:  M C Rawlinson
Journal:  J Med Philos       Date:  1987-11

10.  Houseofficers' reactions to media coverage about the sequencing of the human genome.

Authors:  Gail Geller; Ellen S Tambor; Barbara A Bernhardt; Joann Rodgers; Neil A Holtzman
Journal:  Soc Sci Med       Date:  2003-05       Impact factor: 4.634

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  5 in total

1.  Is there a space for place in family history assessment? Underserved community views on the impact of neighborhood factors on health and prevention.

Authors:  Christopher D Hartmann; Patricia A Marshall; Aaron J Goldenberg
Journal:  J Prim Prev       Date:  2015-04

2.  Disclosing the disclosure: factors associated with communicating the results of genetic susceptibility testing for Alzheimer's disease.

Authors:  Sato Ashida; Laura M Koehly; J Scott Roberts; Clara A Chen; Susan Hiraki; Robert C Green
Journal:  J Health Commun       Date:  2009-12

Review 3.  Applying theory to characterize impediments to dissemination of community-facing family health history tools: a review of the literature.

Authors:  Caitlin G Allen; Debra Duquette; Yue Guan; Colleen M McBride
Journal:  J Community Genet       Date:  2019-07-02

4.  Decisions to seek healthcare based on family health history among urban Appalachian women.

Authors:  Robyn A Cree; John Lynch; Margaret G Au; Melanie F Myers
Journal:  J Genet Couns       Date:  2009-10-08       Impact factor: 2.537

5.  Perceived familiarity with and importance of family health history among a medically underserved population.

Authors:  Sato Ashida; Melody S Goodman; Jewel Stafford; Christina Lachance; Kimberly A Kaphingst
Journal:  J Community Genet       Date:  2012-05-09
  5 in total

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