Literature DB >> 16441849

Key worker services for disabled children: what characteristics of services lead to better outcomes for children and families?

P Sloper1, V Greco, J Beecham, R Webb.   

Abstract

BACKGROUND: Research has shown that families of disabled children who have a key worker benefit from this service and recent policy initiatives emphasize the importance of such services. However, research is lacking on which characteristics of key worker schemes for disabled children are related to better outcomes for families.
METHODS: A postal questionnaire was completed by 189 parents with disabled children who were receiving a service in seven key worker schemes in England and Wales. Path analysis was used to investigate associations between characteristics of the services and outcomes for families (satisfaction with the service, impact of key worker on quality of life, parent unmet need, child unmet need).
RESULTS: The four path models showed that key workers carrying out more aspects of the key worker role, appropriate amounts of contact with key workers, regular training, supervision and peer support for key workers, and having a dedicated service manager and a clear job description for key workers were associated with better outcomes for families. Characteristics of services had only a small impact on child unmet need, suggesting that other aspects of services were affecting child unmet need.
CONCLUSIONS: Implications for policy and practice are discussed, including the need for regular training, supervision and peer support for key workers and negotiated time and resources for them to carry out the role. These influence the extent to which key workers carry out all aspects of the key worker's role and their amount of contact with families, which in turn impact on outcomes.

Entities:  

Mesh:

Year:  2006        PMID: 16441849     DOI: 10.1111/j.1365-2214.2006.00592.x

Source DB:  PubMed          Journal:  Child Care Health Dev        ISSN: 0305-1862            Impact factor:   2.508


  9 in total

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2.  Continuity of care for children with complex chronic health conditions: parents' perspectives.

Authors:  Anton R Miller; Christopher J Condin; William H McKellin; Nicola Shaw; Anne F Klassen; Sam Sheps
Journal:  BMC Health Serv Res       Date:  2009-12-21       Impact factor: 2.655

3.  How well do services for young people with long term conditions deliver features proposed to improve transition?

Authors:  A Colver; R Pearse; R M Watson; M Fay; T Rapley; K D Mann; A Le Couteur; J R Parr; H McConachie
Journal:  BMC Health Serv Res       Date:  2018-05-08       Impact factor: 2.655

4.  Uncertainty and self-efficacy in parents of a child with congenital cataract-New implications for clinical practice.

Authors:  Jenny Gyllén; Gunilla Magnusson; Anna Forsberg
Journal:  Nurs Open       Date:  2019-04-02

5.  Integration of palliative care in services for children with life-limiting neurodevelopmental disabilities and their families: a Delphi study.

Authors:  Suzanne Guerin; Gemma Kiernan; Eileen Courtney; Regina McQuillan; Karen Ryan
Journal:  BMC Health Serv Res       Date:  2020-10-08       Impact factor: 2.655

6.  Magnitude of Satisfaction and Associated Factors Among Caregivers of Children with Disabilities Towards Community-Based Rehabilitation Service in Central and North Gondar Zone, Northwest Ethiopia: A Community-Based Cross-Sectional Study.

Authors:  Molla Fentanew; Melisew Mekie Yitayal; Kalkidan Nigussie Chala; Tesfa Kassa
Journal:  J Multidiscip Healthc       Date:  2021-09-16

7.  Care coordination, consistency and continuity: the case of the key worker role in children's cancer care.

Authors:  Ana Martins; Susie Aldiss; Rachel M Taylor; Faith Gibson
Journal:  Int J Qual Stud Health Well-being       Date:  2022-12

8.  The Role of Care Coordinator for Children with Complex Care Needs: A Systematic Review.

Authors:  Rowan Hillis; Maria Brenner; Philip J Larkin; Des Cawley; Michael Connolly
Journal:  Int J Integr Care       Date:  2016-05-31       Impact factor: 5.120

9.  Are the health needs of young people with cerebral palsy met during transition from child to adult health care?

Authors:  F Solanke; A Colver; H McConachie
Journal:  Child Care Health Dev       Date:  2018-01-28       Impact factor: 2.508

  9 in total

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