Literature DB >> 16437212

Gastrointestinal cancer web sites: how do they address patients' concerns?

Christian Weissenberger1, David Müller, Jan Beranek-Chiu, Marcus Neumann, Sinje Jonassen, Susanne Bartelt, Stefan Schulz, Gerlo Witucki, Karl Henne, Michael Geissler, Joshua Fogel.   

Abstract

BACKGROUND: We studied the quality of web sites containing information on gastrointestinal cancer, focusing on the way these web sites dealt with the special concerns of these patients.
MATERIALS AND METHODS: Searching the Internet for German-language gastroenterological cancer web sites, we collected 9,947 web pages from 14 search engines. Evaluation was done with a 36-item questionnaire. Information quality, availability of the web sites, and web site attributes considering patients' concerns and potential embarrassment were analyzed using a scoring system.
RESULTS: Belonging to 165 web sites, 1,763 of 9,947 (17.7%) web pages found by search engines provided relevant information. Five hundred forty-seven (5.5%) hits were partly relevant, and 7,637 (76.8%) were irrelevant or not available. Most web sites reported about surgery (92.1%), chemotherapy (88.5%), and radiotherapy (73.9%). Of the web sites, 46.7% (n=77), 34.6% (n=57), and 21.8% (n=36) gave information about the author(s) itself, their qualifications, and references of their information, respectively. Search engines ranked web sites giving no information on evidence-based medicine higher than other web sites, whereas web sites providing this information accurately showed higher link popularities. Patients' concerns and potential embarrassment were best addressed by gastrointestinal web sites initiated by private individuals or web sites directed to both a patient and physician audience.
CONCLUSIONS: With regard to gastrointestinal cancer web sites, many search engines may be ineffective, and patient emotional needs and concerns are often disregarded. Also, physicians should guide their patients through the Internet to find high-quality information and use link-popularity-based search strategies.

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Year:  2006        PMID: 16437212     DOI: 10.1007/s00384-005-0046-9

Source DB:  PubMed          Journal:  Int J Colorectal Dis        ISSN: 0179-1958            Impact factor:   2.571


  25 in total

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Authors:  Gunther Eysenbach; Christian Köhler
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2.  Re: bladder cancer facts: accuracy of information on the internet.

Authors:  Christian Weissenberger; Wolfgang Schultze-Seemann
Journal:  J Urol       Date:  2004-10       Impact factor: 7.450

3.  Finding the best from the rest: evaluation of the quality of patient information on the Internet.

Authors:  A D Gilliam; W J Speake; J H Scholefield; I J Beckingham
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4.  [Significance of information for cancer patients and the experience of the German Cancer Information Service in Heidelberg].

Authors:  A Gaisser; H Stamatiadis-Smidt
Journal:  Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz       Date:  2004-10       Impact factor: 1.513

5.  Patient expectation is a strong predictor of severe nausea after chemotherapy: a University of Rochester Community Clinical Oncology Program study of patients with breast carcinoma.

Authors:  Joseph A Roscoe; Peter Bushunow; Gary R Morrow; Jane T Hickok; Philip J Kuebler; Andrew Jacobs; Tarit K Banerjee
Journal:  Cancer       Date:  2004-12-01       Impact factor: 6.860

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Journal:  BMJ       Date:  1996-09-21

7.  Stigma, shame, and blame experienced by patients with lung cancer: qualitative study.

Authors:  A Chapple; S Ziebland; A McPherson
Journal:  BMJ       Date:  2004-06-11

8.  Functions and preferred methods of receiving information related to radiotherapy. Perceptions of patients with cancer.

Authors:  C Hinds; A Streater; D Mood
Journal:  Cancer Nurs       Date:  1995-10       Impact factor: 2.592

9.  Use of the Internet by women with breast cancer.

Authors:  Joshua Fogel; Steven M Albert; Freya Schnabel; Beth Ann Ditkoff; Alfred I Neugut
Journal:  J Med Internet Res       Date:  2002 Apr-Nov       Impact factor: 5.428

10.  Breast cancer: patient information needs reflected in English and German web sites.

Authors:  C Weissenberger; S Jonassen; J Beranek-Chiu; M Neumann; D Müller; S Bartelt; S Schulz; J S Mönting; K Henne; G Gitsch; G Witucki
Journal:  Br J Cancer       Date:  2004-10-18       Impact factor: 7.640

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