Literature DB >> 16436170

Rights of and duties to non-consenting patients--informed refusal in the developing world.

Louis-Jacques van Bogaert.   

Abstract

The principle of informed refusal poses a specific problem when it is invoked by a pregnant woman who, in spite of having accepted her pregnancy, refuses the diagnostic and/or therapeutic measures that would ensure the well-being of her endangered fetus. Guidelines issued by professional bodies in the developed world are conflicting: either they allow autonomy and informed consent to be overruled to the benefit of the fetus, or they recommend the full respect of these principles. A number of medical ethicists advocate the overruling of alleged irrational or unreasonable refusal for the benefit of the fetus. The present essay supports the view of fetal rights to health and to life based on the principle that an 'accepted' fetus is a 'third person'. In developing countries, however, the implementation of the latter principle is likely to be in conflict with a 'communitarian' perception of the individual -- in this case, the pregnant woman. Within the scope of the limitations to the right to autonomy of J.S. Mill's 'harm principle', the South African Patients' Charter makes provision for informed refusal. The fact that, in practice, it is not implemented illustrates the well-known difficulty of applying Western bioethical principles in real life in the developing world.

Entities:  

Keywords:  Genetics and Reproduction; Professional Patient Relationship

Mesh:

Year:  2006        PMID: 16436170     DOI: 10.1111/j.1471-8847.2006.00132.x

Source DB:  PubMed          Journal:  Dev World Bioeth        ISSN: 1471-8731            Impact factor:   2.294


  2 in total

1.  Informed consent in international research: the rationale for different approaches.

Authors:  Donald J Krogstad; Samba Diop; Amadou Diallo; Fawaz Mzayek; Joseph Keating; Ousmane A Koita; Yéya T Touré
Journal:  Am J Trop Med Hyg       Date:  2010-10       Impact factor: 2.345

2.  "The one who chases you away does not tell you go": silent refusals and complex power relations in research consent processes in Coastal Kenya.

Authors:  Dorcas M Kamuya; Sally J Theobald; Vicki Marsh; Michael Parker; Wenzel P Geissler; Sassy C Molyneux
Journal:  PLoS One       Date:  2015-05-15       Impact factor: 3.240

  2 in total

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