Literature DB >> 16404690

Narrating kidney disease: the significance of sensation and time in the emplotment of patient experience.

Ciara Kierans1.   

Abstract

Drawing on research conducted among patients in Ireland, this article examines the narrative constructions of chronic kidney failure and explores the ways in which patient narratives cross-cut and subvert modernist medical constructions of transplantation as a therapeutic outcome, an endgame, a "gift of life." In experience, patients dismantle this construction structure by emplotting their stories around the painful lack of an ending, ardently brought to bear by the lived realities of immunosuppressant drug therapy, the silent fears of graft rejection, and the isolation of recipiency. They articulate, instead, stories that disclose a multi-directional flow between past and future therapeutic interventions, between the altering nature of the renal body and personal experience. These storied dimensions are phenomenologically embedded in the sensory and temporal aspects of this condition as essential elements of chronic illness and as organizational properties of patient narratives.

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Mesh:

Year:  2005        PMID: 16404690     DOI: 10.1007/s11013-005-9171-8

Source DB:  PubMed          Journal:  Cult Med Psychiatry        ISSN: 0165-005X


  12 in total

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  6 in total

1.  Narratives: an essential tool for evaluating living kidney donations.

Authors:  Anne Hambro Alnaes
Journal:  Med Health Care Philos       Date:  2012-05

2.  The Ethics of the Societal Entrenchment-approach and the case of live uterus transplantation-IVF.

Authors:  Lisa Guntram; Kristin Zeiler
Journal:  Med Health Care Philos       Date:  2019-12

3.  What was the impact of a global pandemic (COVID-19) lockdown period on experiences within an eating disorder service? A service evaluation of the views of patients, parents/carers and staff.

Authors:  Hannah Shaw; Sarah Robertson; Nadia Ranceva
Journal:  J Eat Disord       Date:  2021-01-19

4.  The times and spaces of transplantation: queercrip histories as futurities.

Authors:  Donna McCormack
Journal:  Med Humanit       Date:  2021-08-20

Review 5.  How is organ transplantation depicted in internal medicine and transplantation journals.

Authors:  Céline Durand; Andrée Duplantie; Yves Chabot; Hubert Doucet; Marie-Chantal Fortin
Journal:  BMC Med Ethics       Date:  2013-10-02       Impact factor: 2.652

6.  Work of being an adult patient with chronic kidney disease: a systematic review of qualitative studies.

Authors:  Javier Roberti; Amanda Cummings; Michelle Myall; Jonathan Harvey; Kate Lippiett; Katherine Hunt; Federico Cicora; Juan Pedro Alonso; Carl R May
Journal:  BMJ Open       Date:  2018-09-04       Impact factor: 2.692

  6 in total

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