Literature DB >> 16389022

The newborn screening educational gap: what prenatal care providers do compared with what is expected.

Lisa A Faulkner1, Lisa B Feuchtbaum, Steve Graham, Judy P Bolstad, George C Cunningham.   

Abstract

OBJECTIVE: The purpose of this evaluation was to examine prenatal care providers' knowledge of, attitudes towards, and barriers for providing information about newborn screening and tandem mass spectrometry (MS/MS) screening. STUDY
DESIGN: We mailed a 12-question survey to 6197 prenatal care providers in California asking about their experiences with newborn and prenatal screening services.
RESULTS: Although 4/5 of respondents believe newborn screening is very important for their patients, only 1/3 discuss it with all their patients. Over half believe either pediatricians (38%) or hospital staff (36%) will discuss newborn screening. Only 61% of providers give their patients the newborn screening educational booklet, even though California law requires that the booklet be provided to all pregnant women.
CONCLUSION: Pregnant women and state professionals rely on prenatal care providers to educate pregnant women about newborn screening; however, many providers do not appear to view it as part of their responsibility. Therefore, the state needs to improve communication with both providers and the public about newborn screening.

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Mesh:

Year:  2006        PMID: 16389022     DOI: 10.1016/j.ajog.2005.05.075

Source DB:  PubMed          Journal:  Am J Obstet Gynecol        ISSN: 0002-9378            Impact factor:   8.661


  8 in total

1.  Design and evaluation of a decision aid for inviting parents to participate in a fragile X newborn screening pilot study.

Authors:  Donald B Bailey; Megan A Lewis; Shelly L Harris; Tracey Grant; Carla Bann; Ellen Bishop; Myra Roche; Sonia Guarda; Leah Barnum; Cynthia Powell; Bradford L Therrell
Journal:  J Genet Couns       Date:  2012-06-27       Impact factor: 2.537

2.  Newborn screening for G6PD deficiency--why is it important for India?

Authors:  R Kishore Kumar; Nandini Nagar; Enzo Ranieri
Journal:  Indian J Pediatr       Date:  2013-04-19       Impact factor: 1.967

3.  Parental attitudes toward ethical and social issues surrounding the expansion of newborn screening using new technologies.

Authors:  L E Hasegawa; K A Fergus; N Ojeda; S M Au
Journal:  Public Health Genomics       Date:  2010-07-30       Impact factor: 2.000

Review 4.  Ethical issues with newborn screening in the genomics era.

Authors:  Beth A Tarini; Aaron J Goldenberg
Journal:  Annu Rev Genomics Hum Genet       Date:  2012-05-01       Impact factor: 8.929

5.  Maternal knowledge and attitudes about newborn screening for sickle cell disease and cystic fibrosis.

Authors:  Colleen Walsh Lang; Alex P Stark; Kruti Acharya; Lainie Friedman Ross
Journal:  Am J Med Genet A       Date:  2009-11       Impact factor: 2.802

6.  Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial.

Authors:  Jeffrey R Botkin; Erin Rothwell; Rebecca A Anderson; Nancy C Rose; Siobhan M Dolan; Miriam Kuppermann; Louisa A Stark; Aaron Goldenberg; Bob Wong
Journal:  JAMA Pediatr       Date:  2016-06-01       Impact factor: 16.193

7.  Information and Emotional Support Needs of Families Whose Infant Was Diagnosed With SCID Through Newborn Screening.

Authors:  Melissa Raspa; Molly Lynch; Linda Squiers; Angela Gwaltney; Katherine Porter; Holly Peay; Alissa Huston; Brian Fitzek; John G Boyle
Journal:  Front Immunol       Date:  2020-05-06       Impact factor: 7.561

8.  Assessment of the Knowledge and Attitudes of Saudi Mothers towards Newborn Screening.

Authors:  Ayman Al-Sulaiman; Altaf A Kondkar; Mohammad Y Saeedi; Amal Saadallah; Ali Al-Odaib; Khaled K Abu-Amero
Journal:  Biomed Res Int       Date:  2015-10-12       Impact factor: 3.411

  8 in total

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