Literature DB >> 16368790

Lymphangioleiomyomatosis: a national registry for a rare disease.

Anne E Tattersfield, Marilyn K Glassberg.   

Abstract

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Year:  2006        PMID： 16368790     DOI： 10.1164/rccm.2509010

Source DB:  PubMed          Journal:  Am J Respir Crit Care Med        ISSN： 1073-449X            Impact factor:   21.405


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  2 in total

1.  An automated communication system in a contact registry for persons with rare diseases: scalable tools for identifying and recruiting clinical research participants.

Authors:  R L Richesson; H S Lee; D Cuthbertson; J Lloyd; K Young; J P Krischer
Journal:  Contemp Clin Trials       Date:  2008-09-07       Impact factor: 2.226

Review 2.  Innovative measures to combat rare diseases in China: The national rare diseases registry system, larger-scale clinical cohort studies, and studies in combination with precision medicine research.

Authors:  Peipei Song; Jiangjiang He; Fen Li; Chunlin Jin
Journal:  Intractable Rare Dis Res       Date:  2017-02
  2 in total

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