Literature DB >> 16270065

Ethics guidelines for research with the recently dead.

Rebecca D Pentz1, Cynthia B Cohen, Mark Wicclair, Michael A DeVita, Anne Lederman Flamm, Stuart J Youngner, Ann B Hamric, Mary S McCabe, Jacqueline J Glover, Winona J Kittiko, Kathy Kinlaw, James Keller, Adrienne Asch, John J Kavanagh, Wadih Arap.   

Abstract

The objective of the multidisciplinary expert Consensus Panel on Research with the Recently Dead (CPRRD) was to craft ethics guidelines for research with the recently dead. The CPRRD recommends that research with the recently dead: (i) receive scientific and ethical review and oversight; (ii) involve the community of potential research subjects; (iii) be coordinated with organ procurement organizations; (iv) not conflict with organ donation or required autopsy; (v) use procedures respectful of the dead; (vi) be restricted to one procedure per day; (vii) preferably be authorized by first-person consent, though both general advance research directives and surrogate consent are acceptable; (viii) protect confidentiality; (ix) not impose costs on subjects' estates or next of kin and not involve payment; (x) clearly explain ultimate disposition of the body.

Entities:  

Keywords:  Biomedical and Behavioral Research; Death and Euthanasia

Mesh:

Year:  2005        PMID: 16270065     DOI: 10.1038/nm1105-1145

Source DB:  PubMed          Journal:  Nat Med        ISSN: 1078-8956            Impact factor:   53.440


  34 in total

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2.  Taking DNA from the dead.

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Review 3.  Informed consent in research to improve the number and quality of deceased donor organs.

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4.  Combinatorial ligand-directed lung targeting.

Authors:  Ricardo J Giordano; Julianna K Edwards; Rubin M Tuder; Wadih Arap; Renata Pasqualini
Journal:  Proc Am Thorac Soc       Date:  2009-08-15

5.  Next-generation phage display: integrating and comparing available molecular tools to enable cost-effective high-throughput analysis.

Authors:  Emmanuel Dias-Neto; Diana N Nunes; Ricardo J Giordano; Jessica Sun; Gregory H Botz; Kuan Yang; João C Setubal; Renata Pasqualini; Wadih Arap
Journal:  PLoS One       Date:  2009-12-17       Impact factor: 3.240

6.  A community-based model of rapid autopsy in end-stage cancer patients.

Authors:  Kathryn Alsop; Heather Thorne; Shahneen Sandhu; Anne Hamilton; Christopher Mintoff; Elizabeth Christie; Odette Spruyt; Scott Williams; Orla McNally; Linda Mileshkin; Sumitra Ananda; Julene Hallo; Sherene Loi; Clare Scott; Peter Savas; Lisa Devereux; Patricia O'Brien; Sameera Gunawardena; Clare Hampson; Kate Strachan; Rufaro Diana Jaravaza; Victoria Francis; Gregory Young; David Ranson; Ravindra Samaranayake; David Stevens; Samantha Boyle; Clare Fedele; Monique Topp; Gwo Ho; Zhi Ling Teo; Renea A Taylor; Melissa M Papargiris; Mitchell G Lawrence; Hong Wang; Gail P Risbridger; Nicole M Haynes; Mikolaj Medon; Ricky W Johnstone; Eva Vidacs; Gisela Mir Arnau; Ismael A Vergara; Anthony T Papenfuss; Grant McArthur; Paul Waring; Shirley Carvosso; Christopher Angel; David Gyorki; Benjamin Solomon; Gillian Mitchell; Sue Shanley; Prudence A Francis; Sarah-Jane Dawson; Amy Haffenden; Erin Tidball; Mila Volchek; Jan Pyman; Mohammed Madadin; Jodie Leditschke; Stephen Cordner; Mark Shackleton; David D Bowtell
Journal:  Nat Biotechnol       Date:  2016-09-12       Impact factor: 54.908

7.  A human-specific mutation limits nonhuman primate efficacy in preclinical xenotransplantation studies.

Authors:  Joshua P Waldman; Linda G Brock; Michael A Rees
Journal:  Transplantation       Date:  2014-02-27       Impact factor: 4.939

8.  Stakeholder perceptions of thoracic rapid tissue donation: An exploratory study.

Authors:  Jessica McIntyre; Christie Pratt; Rebecca D Pentz; Eric B Haura; Gwendolyn P Quinn
Journal:  Soc Sci Med       Date:  2013-09-06       Impact factor: 4.634

9.  Still Human: A Call for Increased Focus on Ethical Standards in Cadaver Research.

Authors:  Michelle C Bach
Journal:  HEC Forum       Date:  2016-12

10.  Altruism in terminal cancer patients and rapid tissue donation program: does the theory apply?

Authors:  Gwendolyn P Quinn; Devin Murphy; Christie Pratt; Teresita Muñoz-Antonia; Lucy Guerra; Matthew B Schabath; Marino E Leon; Eric Haura
Journal:  Med Health Care Philos       Date:  2013-11
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