Literature DB >> 16255450

Moving beyond good intentions: indigenous participation in aboriginal and Torres Strait islander health research.

Emma Kowal1, Ian Anderson, Ross Bailie.   

Abstract

Indigenous participation in every aspect of health research is increasingly recognised as an important element of any research project that aims to improve Indigenous health. Despite the acceptance of its importance, when the concept of 'Indigenous participation' is mentioned, authors are often imprecise as to the nature and purpose of participation, and its relationship to improved health outcomes. This report attempts to bring some clarity to the variety of meanings we might give Indigenous participation in research. For the purposes of stimulating further debate, we identify four distinct, but overlapping, rationales: pragmatic, moral, interventionist, and epistemological. Each has different implications for how Indigenous participation should be implemented and evaluated. More debate on the meanings and purposes of Indigenous participation will contribute to a refined understanding of its potential benefits to health research.

Mesh:

Year:  2005        PMID: 16255450     DOI: 10.1111/j.1467-842x.2005.tb00228.x

Source DB:  PubMed          Journal:  Aust N Z J Public Health        ISSN: 1326-0200            Impact factor:   2.939


  7 in total

1.  Is peer review useful in assessing research proposals in Indigenous health? A case study.

Authors:  Jackie Street; Fran Baum; Ian P S Anderson
Journal:  Health Res Policy Syst       Date:  2009-02-13

2.  Genetic research and aboriginal and Torres Strait Islander Australians.

Authors:  Emma Kowal; Glenn Pearson; Lobna Rouhani; Chris S Peacock; Sarra E Jamieson; Jenefer M Blackwell
Journal:  J Bioeth Inq       Date:  2012-10-12       Impact factor: 1.352

3.  "Makes you proud to be black eh?": reflections on meaningful indigenous research participation.

Authors:  Jenny Kelly; Sherry Saggers; Kylie Taylor; Glenn Pearce; Peter Massey; Jennifer Bull; Travis Odo; John Thomas; Rosita Billycan; Jenni Judd; Susan Reilly; Shayne Ahboo
Journal:  Int J Equity Health       Date:  2012-08-08

Review 4.  Engaging older adults in healthcare research and planning: a realist synthesis.

Authors:  Heather McNeil; Jacobi Elliott; Kelsey Huson; Jessica Ashbourne; George Heckman; Jennifer Walker; Paul Stolee
Journal:  Res Involv Engagem       Date:  2016-03-07

5.  'Work it out': evaluation of a chronic condition self-management program for urban Aboriginal and Torres Strait Islander people, with or at risk of cardiovascular disease.

Authors:  Kyly Mills; Michelle L Gatton; Ray Mahoney; Alison Nelson
Journal:  BMC Health Serv Res       Date:  2017-09-26       Impact factor: 2.655

6.  Study protocol: a clinical trial for improving mental health screening for Aboriginal and Torres Strait Islander pregnant women and mothers of young children using the Kimberley Mum's Mood Scale.

Authors:  Emma Carlin; Sarah J Blondell; Yvonne Cadet-James; Sandra Campbell; Melissa Williams; Catherine Engelke; Des Taverner; Rhonda Marriott; Karen Edmonds; David Atkinson; Julia V Marley
Journal:  BMC Public Health       Date:  2019-11-14       Impact factor: 3.295

Review 7.  Mobile Health for First Nations Populations: Systematic Review.

Authors:  Georgina R Hobson; Liam J Caffery; Maike Neuhaus; Danette H Langbecker
Journal:  JMIR Mhealth Uhealth       Date:  2019-10-07       Impact factor: 4.773

  7 in total

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