CONTEXT: There is concern that a disproportionately high number of people of South Asian origin await transplantation in Canada. The donation rate is low in this population, and it is difficult to obtain good tissue matches. OBJECTIVE: To explore the values and beliefs regarding organ donation among Indo-Canadian people living in British Columbia. DESIGN: A naturalistic qualitative study was designed. Individual interviews and focus groups were held to collect data pertaining to beliefs regarding organ donation. SETTING: Lower Mainland of British Columbia, Canada. PARTICIPANTS: A total of 40 Indo-Canadian persons participated; a wide range of ages, religions, and backgrounds were represented. RESULTS: The major themes that emerged from the data related to context (including family/community, religion, trust in the healthcare system, and knowledge about organ donation); and values and beliefs (including intergenerational considerations, death and dying, and the organ donation process). Participants noted that people from their community were reluctant to discuss death and relatedissues such as organ donation. Although there was recognition of the importance of individual decision making pertaining to organ donation, the participants believed that family and community members also should be involved. CONCLUSIONS: Beliefs varied considerably among participants, and one should not make assumptions about the beliefs of any one individual based primarily on that individual's membership in an ethnocultural community.
CONTEXT: There is concern that a disproportionately high number of people of South Asian origin await transplantation in Canada. The donation rate is low in this population, and it is difficult to obtain good tissue matches. OBJECTIVE: To explore the values and beliefs regarding organ donation among Indo-Canadian people living in British Columbia. DESIGN: A naturalistic qualitative study was designed. Individual interviews and focus groups were held to collect data pertaining to beliefs regarding organ donation. SETTING: Lower Mainland of British Columbia, Canada. PARTICIPANTS: A total of 40 Indo-Canadian persons participated; a wide range of ages, religions, and backgrounds were represented. RESULTS: The major themes that emerged from the data related to context (including family/community, religion, trust in the healthcare system, and knowledge about organ donation); and values and beliefs (including intergenerational considerations, death and dying, and the organ donation process). Participants noted that people from their community were reluctant to discuss death and relatedissues such as organ donation. Although there was recognition of the importance of individual decision making pertaining to organ donation, the participants believed that family and community members also should be involved. CONCLUSIONS: Beliefs varied considerably among participants, and one should not make assumptions about the beliefs of any one individual based primarily on that individual's membership in an ethnocultural community.
Authors: Alvin Ho-Ting Li; Ngan N Lam; Sonny Dhanani; Matthew Weir; Versha Prakash; Joseph Kim; Greg Knoll; Amit X Garg Journal: CMAJ Open Date: 2016-10-11
Authors: Noor El-Dassouki; Dorothy Wong; Deanna M Toews; Jagbir Gill; Beth Edwards; Ani Orchanian-Cheff; Paula Neves; Lydia-Joi Marshall; Istvan Mucsi Journal: Can J Kidney Health Dis Date: 2021-03-03
Authors: Alvin Ho-Ting Li; Eric McArthur; Janet Maclean; Cynthia Isenor; Versha Prakash; S Joseph Kim; Greg Knoll; Baiju Shah; Amit X Garg Journal: PLoS One Date: 2015-07-31 Impact factor: 3.240