Literature DB >> 16225444

Self-management in adolescents with chronic illness. What does it mean and how can it be achieved?

Susan M Sawyer1, Rosalie A Aroni.   

Abstract

The concept of self-management is based on the notion that it will improve wellbeing and strengthen self-determination and participation in health care, while reducing health care utilisation and health costs. Increasing self-management is a desirable goal for the 15%-20% of children and adolescents who have a significant ongoing health care need related to a chronic health condition. Promoting self-management in young people with chronic illness can be difficult for parents and health care practitioners. Doctors can help parents recognise the potentially competing aspects of the parenting role--protecting young people's health while supporting their growing independence and autonomy. Optimal care may or may not be achievable, depending on a young person's level of development. As children mature through adolescence, they increasingly want their own voice to be heard, as well as the right to privacy and confidentiality in health care consultations. As well as listening to parents and supporting their roles, doctors should see young people alone for part of the consultation, taking a psychosocial history and carefully maintaining confidentiality.

Entities:  

Mesh:

Year:  2005        PMID: 16225444     DOI: 10.5694/j.1326-5377.2005.tb07103.x

Source DB:  PubMed          Journal:  Med J Aust        ISSN: 0025-729X            Impact factor:   7.738


  30 in total

Review 1.  Adherence to medical recommendations and transition to adult services in pediatric transplant recipients.

Authors:  Eyal Shemesh; Rachel A Annunziato; Ronen Arnon; Tamir Miloh; Nanda Kerkar
Journal:  Curr Opin Organ Transplant       Date:  2010-06       Impact factor: 2.640

2.  Caregiver reports of provider recommended frequency of blood glucose monitoring and actual testing frequency for youth with type 1 diabetes.

Authors:  Joyce P Yi-Frazier; Korey Hood; Doug Case; Beth Waitzfelder; Andrea Anderson; Clifford A Bloch; Michelle Naughton; Michael Seid; Giuseppina Imperatore; Beth Loots; Ronny Bell; Jean M Lawrence
Journal:  Diabetes Res Clin Pract       Date:  2011-09-21       Impact factor: 5.602

3.  Assessing allocation of responsibility for health management in pediatric liver transplant recipients.

Authors:  Jacob L Bilhartz; M James Lopez; John C Magee; Victoria L Shieck; Sally J Eder; Emily M Fredericks
Journal:  Pediatr Transplant       Date:  2015-03-31

4.  A framework for youth-friendly genetic counseling.

Authors:  Mary-Anne Young; Kate Thompson; Jeremy Lewin; Lucy Holland
Journal:  J Community Genet       Date:  2019-11-05

5.  Self-Management Measurement and Prediction of Clinical Outcomes in Pediatric Transplant.

Authors:  Rachel A Annunziato; John C Bucuvalas; Wanrong Yin; Ravinder Arnand; Estella M Alonso; George V Mazariegos; Robert S Venick; Margaret L Stuber; Benjamin L Shneider; Eyal Shemesh
Journal:  J Pediatr       Date:  2017-11-20       Impact factor: 4.406

6.  Associations between self-harm and chronic disease among adolescents: Cohort study using statewide emergency department data.

Authors:  Cristina Lidón-Moyano; Deborah Wiebe; Paul Gruenewald; Magdalena Cerdá; Paul Brown; Sidra Goldman-Mellor
Journal:  J Adolesc       Date:  2019-03-20

7.  Knowledge of and Attitudes Towards Behavioral Health Services Among Older Youth in the Foster Care System.

Authors:  Michelle R Munson; Sarah Carter Narendorf; J Curtis McMillen
Journal:  Child Adolesc Social Work J       Date:  2011-04-01

Review 8.  Post-transplant adjustment--the later years.

Authors:  Emily M Fredericks; Nataliya Zelikovsky; Isabelle Aujoulat; Anna Hames; Jo Wray
Journal:  Pediatr Transplant       Date:  2014-09-13

Review 9.  Interventions for patients and caregivers to improve knowledge of sickle cell disease and recognition of its related complications.

Authors:  Monika R Asnani; Kim R Quimby; Nadia R Bennett; Damian K Francis
Journal:  Cochrane Database Syst Rev       Date:  2016-10-06

10.  Health professionals' and managers' definitions of developmentally appropriate healthcare for young people: conceptual dimensions and embedded controversies.

Authors:  Albert Farre; Victoria Wood; Janet E McDonagh; Jeremy R Parr; Debbie Reape; Tim Rapley
Journal:  Arch Dis Child       Date:  2016-03-04       Impact factor: 3.791

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