H S S Chan1, P H B Lau, K H Fong, D Poon, C C C Lam. 1. Central Kowloon Child Assessment Centre, Child Assessment Service, Department of Health, 147L Argyle Street, Hong Kong. sophelia_chan@dh.gov.hk
Abstract
OBJECTIVES: To study children with cerebral palsy in Hong Kong, their neuroimpairment, activity limitation, and participation restriction in society. Parents' opinion on current medical and rehabilitation services was also sought. DESIGN: Systematic survey using questionnaires. SETTING: Four associations in Hong Kong: Child Assessment Service, Hong Kong Association for Parents of Children with Physical Disabilities, Association of Parents of the Severely Mentally Handicapped, and Hong Kong Physically Handicapped and Able-Bodied Association. PARTICIPANTS: Parents of children with cerebral palsy. MAIN OUTCOME MEASURES: Neuroimpairment, activity limitation, and participation restriction. RESULTS: Information from 181 children with cerebral palsy was analysed. Among them, 56% were boys. The mean age was 7 years 6 months (standard deviation, 3 years 11 months). The most common diagnostic type was spastic cerebral palsy. Co-morbidities in children with cerebral palsy were common. Limitation in daily activities including mobility and self-care tasks was considerable and this posed great stress to parents when taking care of their children. Children's participation in both social and leisure activities was regarded as a low priority. A high percentage (70%) of parents reported difficulty in travelling. The reasons involved problems in transportation, building access (entry and exit), and attitudes of the general public. These environmental factors restricted the social participation of the children and their families. Over 75% of parents were satisfied with the current medical and rehabilitation services. CONCLUSIONS: Children with cerebral palsy have multiple and complex needs. The findings of this study may serve as a reference for parents, service providers, and policy makers to work in partnership to achieve a more comprehensive health-care service for children with cerebral palsy and to facilitate better integration into the community.
OBJECTIVES: To study children with cerebral palsy in Hong Kong, their neuroimpairment, activity limitation, and participation restriction in society. Parents' opinion on current medical and rehabilitation services was also sought. DESIGN: Systematic survey using questionnaires. SETTING: Four associations in Hong Kong: Child Assessment Service, Hong Kong Association for Parents of Children with Physical Disabilities, Association of Parents of the Severely Mentally Handicapped, and Hong Kong Physically Handicapped and Able-Bodied Association. PARTICIPANTS: Parents of children with cerebral palsy. MAIN OUTCOME MEASURES: Neuroimpairment, activity limitation, and participation restriction. RESULTS: Information from 181 children with cerebral palsy was analysed. Among them, 56% were boys. The mean age was 7 years 6 months (standard deviation, 3 years 11 months). The most common diagnostic type was spastic cerebral palsy. Co-morbidities in children with cerebral palsy were common. Limitation in daily activities including mobility and self-care tasks was considerable and this posed great stress to parents when taking care of their children. Children's participation in both social and leisure activities was regarded as a low priority. A high percentage (70%) of parents reported difficulty in travelling. The reasons involved problems in transportation, building access (entry and exit), and attitudes of the general public. These environmental factors restricted the social participation of the children and their families. Over 75% of parents were satisfied with the current medical and rehabilitation services. CONCLUSIONS:Children with cerebral palsy have multiple and complex needs. The findings of this study may serve as a reference for parents, service providers, and policy makers to work in partnership to achieve a more comprehensive health-care service for children with cerebral palsy and to facilitate better integration into the community.
Authors: Hamdy N El-Tallawy; Wafaa Ma Farghaly; Ghaydaa A Shehata; Tarek A Rageh; Nabil A Metwally; Reda Badry; Mohamed Am Sayed; Mohamed Abd El Hamed; Ahmed Abd-Elwarth; Mahmoud R Kandil Journal: Neuropsychiatr Dis Treat Date: 2014-07-08 Impact factor: 2.570