Literature DB >> 16181153

Impact of patient confidentiality on carers of people who have a mental disorder.

Dianne Wynaden1, Angelica Orb.   

Abstract

This paper discusses how patient confidentiality issues impact on carers of people with mental disorders. Data obtained from interviews with 27 primary carers were analysed using the grounded theory method. Despite the emphasis that Australian mental health policy documents place on collaboration with carers, the findings of this Western Australian study showed that carers were expected to undertake the caring role with little support, education or understanding. The lack of collaboration with health professionals increased carers' level of distress and left them feeling frustrated and resentful. Carers have identified that patient confidentiality was one reason why health professionals were unwilling to collaborate with them. To ensure carers' continued commitment to caring, negotiation about patient confidentiality issues must occur at the onset of the caregiving process. Carers have the right to certain information in order to maintain their level of well-being and their personal safety. Moreover, in certain circumstances, patient confidentiality may need to be breached if the life of the ill family member or others is in danger. A greater carer involvement in and understanding of the ill family member's illness will facilitate better treatment outcomes in the community for the ill family member.

Entities:  

Keywords:  Empirical Approach; Mental Health Therapies; Professional Patient Relationship

Mesh:

Year:  2005        PMID: 16181153     DOI: 10.1111/j.1440-0979.2005.00377.x

Source DB:  PubMed          Journal:  Int J Ment Health Nurs        ISSN: 1445-8330            Impact factor:   3.503


  8 in total

1.  Quality of Life and Social Isolation Among Caregivers of Adults with Schizophrenia: Policy and Outcomes.

Authors:  Laura Hayes; Graeme Hawthorne; John Farhall; Brendan O'Hanlon; Carol Harvey
Journal:  Community Ment Health J       Date:  2015-02-18

2.  Inspiring Muslim Minds: Evaluating a Spiritually Adapted Psycho-educational Program on Addiction to Overcome Stigma in Canadian Muslim Communities.

Authors:  Ahmed N Hassan; Heba Ragheb; Arfeen Malick; Zainib Abdullah; Yusra Ahmad; Nadiya Sunderji; Farah Islam
Journal:  Community Ment Health J       Date:  2020-08-25

3.  Invisible experts: a systematic review & thematic synthesis of informal carer experiences of inpatient mental health care.

Authors:  Nada Abou Seif; Lisa Wood; Nicola Morant
Journal:  BMC Psychiatry       Date:  2022-05-20       Impact factor: 4.144

4.  Mental health professionals and information sharing: carer perspectives.

Authors:  L S Wilson; D Pillay; B D Kelly; P Casey
Journal:  Ir J Med Sci       Date:  2014-07-15       Impact factor: 1.568

5.  European Psychiatric Association policy paper on ethical aspects in communication with patients and their families.

Authors:  Bernardo Carpiniello; Danuta Wasserman
Journal:  Eur Psychiatry       Date:  2020-04-01       Impact factor: 5.361

6.  Locked out during COVID-19 lockdown-an online survey of relatives of people with psychotic and bipolar disorders in Norway.

Authors:  Sofie R Aminoff; Erlend Mork; Elizabeth Ann Barrett; Carmen Simonsen; Wenche Ten Velden Hegelstad; Trine Vik Lagerberg; Ingrid Melle; Kristin Lie Romm
Journal:  BMC Public Health       Date:  2022-02-13       Impact factor: 3.295

7.  Assessing the Perception of Family and Caregivers' Experience with Mental Health and Substance Use Services.

Authors:  Tayla Smith; Leslie Wells; Kelsey Jones; Alexia Jaouich; Brian Rush
Journal:  Int J Ment Health Addict       Date:  2022-08-02       Impact factor: 11.555

8.  Evaluation of the acceptability and usefulness of an information website for caregivers of people with bipolar disorder.

Authors:  Lesley Berk; Michael Berk; Seetal Dodd; Claire Kelly; Stefan Cvetkovski; Anthony Francis Jorm
Journal:  BMC Med       Date:  2013-07-11       Impact factor: 8.775

  8 in total

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