A S Aznar1, D G Castañón. 1. ITINERIS Fundation-Organizational Empowerment Workshops in Disability, Buenos Aires, Argentine. itineris@fibertel.com.ar
Abstract
BACKGROUND: To date, little research has focused on what factors constitute a quality of life (QOL) among Latin American families with a member who is intellectually disabled. METHOD: Total 180 Latin American families cooperated in a participative research project. During 18 months, the families and a team exchanged information about their QOL by means of questionnaires and grids that the families analysed and completed at their homes. RESULTS: In Latin America, families attribute utmost importance to interpersonal relations and emotional well-being. In addition, results identified a number of QOL domains and indicators reflective of family-centred QOL among Latin American families. A tool with 42 indicators grouped in six areas was obtained. CONCLUSIONS: Quality of life is a concept that has meaning and structure which varies considerably from culture to culture. A topologic QOL model is presented to facilitate the cross-cultural understanding of the QOL construct.
BACKGROUND: To date, little research has focused on what factors constitute a quality of life (QOL) among Latin American families with a member who is intellectually disabled. METHOD: Total 180 Latin American families cooperated in a participative research project. During 18 months, the families and a team exchanged information about their QOL by means of questionnaires and grids that the families analysed and completed at their homes. RESULTS: In Latin America, families attribute utmost importance to interpersonal relations and emotional well-being. In addition, results identified a number of QOL domains and indicators reflective of family-centred QOL among Latin American families. A tool with 42 indicators grouped in six areas was obtained. CONCLUSIONS: Quality of life is a concept that has meaning and structure which varies considerably from culture to culture. A topologic QOL model is presented to facilitate the cross-cultural understanding of the QOL construct.
Authors: Ines M Aguerre; Amy R Riley-Powell; Caroline T Weldon; Monica J Pajuelo; Rosa A Celis Nacimento; Anité Puente-Arnao; Lilia Cabrera; Richard A Oberhelman; Valerie A Paz-Soldan Journal: Disabil Rehabil Date: 2018-06-17 Impact factor: 3.033
Authors: Anna Balcells-Balcells; Joana M Mas; Natasha Baqués; Cecilia Simón; Simón García-Ventura Journal: Int J Environ Res Public Health Date: 2020-10-25 Impact factor: 3.390