Literature DB >> 16162115

Quality of life and its measurement: important principles and guidelines.

M A Verdugo1, R L Schalock, K D Keith, R J Stancliffe.   

Abstract

BACKGROUND: The importance of the valid assessment of quality of life (QOL) is heightened with the increased use of the QOL construct as a basis for policies and practices in the field of intellectual disability (ID).
METHOD: This article discusses the principles that should guide the measurement process, the major interrogatories (i.e. who, what, when, where, why, and how) of QOL measurement, issues and procedures in the cross-cultural measurement of QOL, and the current uses of QOL data.
RESULTS: Based on the above methods, the article presents a number of important guidelines regarding QOL measurement.
CONCLUSION: From a measurement perspective the use of the QOL construct is changing. Initially it was used as a sensitizing notion, social construct, and unifying theme. Increasingly, it is being used as conceptual framework for assessing quality outcomes, a social construct that guides quality enhancement strategies, and a criterion for assessing the effectiveness of those strategies. This new role places additional emphasis on the valid assessment of one's QOL.

Mesh:

Year:  2005        PMID: 16162115     DOI: 10.1111/j.1365-2788.2005.00739.x

Source DB:  PubMed          Journal:  J Intellect Disabil Res        ISSN: 0964-2633


  28 in total

Review 1.  Quality of life in survivors of childhood cancer: a systematic review of the literature (2001-2008).

Authors:  Janette McDougall; Miranda Tsonis
Journal:  Support Care Cancer       Date:  2009-06-02       Impact factor: 3.603

2.  Cross-cultural adaptation and psychometric validation of a Spanish version of the Quality of Life in Late-Stage Dementia Scale.

Authors:  Josep Garre-Olmo; Xènia Planas-Pujol; Secundino López-Pousa; Myron F Weiner; Antoni Turon-Estrada; Dolors Juvinyà; David Ballester; Joan Vilalta-Franch
Journal:  Qual Life Res       Date:  2010-02-03       Impact factor: 4.147

3.  Enjoyment, Barriers, and Beliefs About Physical Activity in Adolescents With and Without Autism Spectrum Disorder.

Authors:  Heidi Stanish; Carol Curtin; Aviva Must; Sarah Phillips; Melissa Maslin; Linda Bandini
Journal:  Adapt Phys Activ Q       Date:  2015-10       Impact factor: 2.929

Review 4.  When Rules Are Not Enough: Developing Principles to Guide Ethical Conduct.

Authors:  Elizabeth M Kelly; Kaitlin Greeny; Nancy Rosenberg; Ilene Schwartz
Journal:  Behav Anal Pract       Date:  2020-10-23

5.  Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure.

Authors:  Jenny Downs; Peter Jacoby; Helen Leonard; Amy Epstein; Nada Murphy; Elise Davis; Dinah Reddihough; Andrew Whitehouse; Katrina Williams
Journal:  Qual Life Res       Date:  2018-11-20       Impact factor: 4.147

6.  Girls' quality of life prior to detention in relation to psychiatric disorders, trauma exposure and socioeconomic status.

Authors:  Lore Van Damme; Olivier Colins; Jessica De Maeyer; Robert Vermeiren; Wouter Vanderplasschen
Journal:  Qual Life Res       Date:  2014-11-28       Impact factor: 4.147

7.  Association between drug prescribing and quality of life in primary care.

Authors:  Samanta E Fröhlich; Anamaria V Zaccolo; Sabrina L C da Silva; Sotero S Mengue
Journal:  Pharm World Sci       Date:  2010-08-29

Review 8.  Quantitative and qualitative insights into the experiences of children with Rett syndrome and their families.

Authors:  Jenny Downs; Helen Leonard
Journal:  Wien Med Wochenschr       Date:  2016-08-04

9.  Children with autism: quality of life and parental concerns.

Authors:  Li-Ching Lee; Rebecca A Harrington; Brian B Louie; Craig J Newschaffer
Journal:  J Autism Dev Disord       Date:  2007-12-06

10.  Use of the Milan Pet Quality of Life Instrument (MPQL) to Measure Pets' Quality of Life during COVID-19.

Authors:  Patrizia Piotti; Christos Karagiannis; Liam Satchell; Manuela Michelazzi; Mariangela Albertini; Enrico Alleva; Federica Pirrone
Journal:  Animals (Basel)       Date:  2021-05-08       Impact factor: 2.752

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