Literature DB >> 16138530

Caring for family with Alzheimer's disease and Parkinson's disease: needs, challenges and satisfaction.

Barbara Habermann1, Linda Lindsey Davis.   

Abstract

A convenience sample of 40 family members caring for an individual with either Alzheimer's disease (AD) or Parkinson's disease (PD) completed the Caregiver Assistance Measure (CAM) to identify the types of assistance that would be most helpful in caring for a family member at home. The CAM measures three categories or types of assistance: care knowledge and skills, self-care, and resource acquisition. Caregivers also completed open-ended questions about the difficulties and the satisfactions of caregiving. The PD and AD caregivers agreed on the importance of 75% of the assistance items on the CAM. In addition, both groups of caregivers identified issues related to care knowledge and skills and selfcare as the most difficult aspects of caregiving. These findings suggest many caregiver needs may be common across chronic illness populations and provide initial support for the development and testing of standardized interventions for caregivers.

Entities:  

Mesh:

Year:  2005        PMID: 16138530     DOI: 10.3928/0098-9134-20050601-11

Source DB:  PubMed          Journal:  J Gerontol Nurs        ISSN: 0098-9134            Impact factor:   1.254


  9 in total

1.  Data Collection Order: A Primer.

Authors:  T Deshefy-Longhi; S Sullivan-Bolyai; J K Dixon
Journal:  South Online J Nurs Res       Date:  2009

2.  Caring for parents with neurodegenerative disease: a qualitative description.

Authors:  Barbara Habermann; Dana Hines; Linda Davis
Journal:  Clin Nurse Spec       Date:  2013 Jul-Aug       Impact factor: 1.067

3.  Lack of communication and control: experiences of distance caregivers of parents with advanced cancer.

Authors:  Polly Mazanec; Barbara J Daly; Betty Rolling Ferrell; Maryjo Prince-Paul
Journal:  Oncol Nurs Forum       Date:  2011-05       Impact factor: 2.172

4.  Co-Designing an Integrated Care Network with People Living with Parkinson's Disease: A Heterogeneous Social Network of People, Resources and Technologies.

Authors:  Amélie Gauthier-Beaupré; Emely Poitras; Sylvie Grosjean; Tiago A Mestre
Journal:  J Pers Med       Date:  2022-06-19

5.  Home caregivers' satisfaction with the services provided by Riyadh Military Hospital's home support program.

Authors:  Hesham Al-Khashan; Adel Mishriky; Mohei Selim; Abdalla El Sheikh; Abdulaziz A BinSaeed
Journal:  Ann Saudi Med       Date:  2011 Nov-Dec       Impact factor: 1.526

Review 6.  Understanding the Impact of Brain Disorders: Towards a 'Horizontal Epidemiology' of Psychosocial Difficulties and Their Determinants.

Authors:  Alarcos Cieza; Marta Anczewska; Jose Luis Ayuso-Mateos; Mary Baker; Jerome Bickenbach; Somnath Chatterji; Sally Hartley; Matilde Leonardi; Tuuli Pitkänen
Journal:  PLoS One       Date:  2015-09-09       Impact factor: 3.240

Review 7.  How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer's disease or related diseases? A systematic review of quantitative and qualitative studies.

Authors:  T Novais; V Dauphinot; P Krolak-Salmon; C Mouchoux
Journal:  BMC Geriatr       Date:  2017-04-17       Impact factor: 3.921

8.  Respite: carers' experiences and perceptions of respite at home.

Authors:  Nan Greenwood; Ruth Habibi; Ann Mackenzie
Journal:  BMC Geriatr       Date:  2012-08-03       Impact factor: 3.921

9.  Determinants of Psychosocial Difficulties Experienced by Persons with Brain Disorders: Towards a 'Horizontal Epidemiology' Approach.

Authors:  Carla Sabariego; Michaela Coenen; Carolina Ballert; Maria Cabello; Matilde Leonardi; Marta Anczewska; Tuuli Pitkänen; Alberto Raggi; Blanca Mellor; Venusia Covelli; Piotr Świtaj; Jonna Levola; Silvia Schiavolin; Anna Chrostek; Jerome Bickenbach; Somnath Chatterji; Alarcos Cieza
Journal:  PLoS One       Date:  2015-12-16       Impact factor: 3.240

  9 in total

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