Literature DB >> 16125030

Personal values and individual quality of life in palliative care patients.

Martin J Fegg1, Maria Wasner, Christian Neudert, Gian Domenico Borasio.   

Abstract

To evaluate the relationship between personal values and individual quality of life (iQoL) in palliative care patients, 75 patients with advanced cancer or amyotrophic lateral sclerosis (ALS) were asked to complete a self-report questionnaire concerning personal values and a semi-structured interview on their iQoL. Sixty-four patients took part in the study (56% cancer, 44% ALS). The most important personal values were benevolence, self-direction, and universalism, whereas power, achievement, and stimulation were the least important. Self-transcendence values were higher than self-enhancement values in all patients. Compared with healthy adults, palliative care patients scored significantly higher in benevolence and lower in self-enhancement values. Conservation values (security, conformity, tradition) were correlated with higher levels of iQoL (P=0.03). There were no significant differences between ALS and cancer patients. These data suggest that conservation values protect the patients' iQoL in the palliative care situation. The observed shift towards self-transcendence values may be related to coping processes of terminally ill patients. The relationship between self-transcendence values and iQoL should be further investigated.

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Mesh:

Year:  2005        PMID: 16125030     DOI: 10.1016/j.jpainsymman.2005.02.012

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  18 in total

Review 1.  The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW.

Authors:  L Wettergren; A Kettis-Lindblad; M Sprangers; L Ring
Journal:  Qual Life Res       Date:  2009-06-03       Impact factor: 4.147

Review 2.  The role of palliative care in patients with neurological diseases.

Authors:  Gian Domenico Borasio
Journal:  Nat Rev Neurol       Date:  2013-04-02       Impact factor: 42.937

3.  Specialized home palliative care for adults and children: differences and similarities.

Authors:  Gesa Groh; Berend Feddersen; Monika Führer; Gian Domenico Borasio
Journal:  J Palliat Med       Date:  2014-06-13       Impact factor: 2.947

4.  The experience of using the SEIQoL-DW with patients with advanced chronic obstructive pulmonary disease (COPD): issues of process and outcome.

Authors:  Morag Farquhar; Gail Ewing; Irene J Higginson; Sara Booth
Journal:  Qual Life Res       Date:  2010-03-12       Impact factor: 4.147

5.  Measuring individual quality of life in patients receiving radiation therapy: the SEIQoL-Questionnaire.

Authors:  Gerhild Becker; Constanze S Merk; Cornelia Meffert; Felix Momm
Journal:  Qual Life Res       Date:  2014-03-01       Impact factor: 4.147

6.  Depression and quality of life in patients with amyotrophic lateral sclerosis.

Authors:  Dorothée Lulé; Sonja Häcker; Albert Ludolph; Niels Birbaumer; Andrea Kübler
Journal:  Dtsch Arztebl Int       Date:  2008-06-06       Impact factor: 5.594

7.  Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals.

Authors:  Anne Hogden; David Greenfield; Peter Nugus; Matthew C Kiernan
Journal:  Patient Prefer Adherence       Date:  2012-09-27       Impact factor: 2.711

8.  Quality of life among patients receiving palliative care in South Africa and Uganda: a multi-centred study.

Authors:  Lucy E Selman; Irene J Higginson; Godfrey Agupio; Natalya Dinat; Julia Downing; Liz Gwyther; Thandi Mashao; Keletso Mmoledi; Tony Moll; Lydia Mpanga Sebuyira; Barbara Ikin; Richard Harding
Journal:  Health Qual Life Outcomes       Date:  2011-04-08       Impact factor: 3.186

Review 9.  Somatically ill persons' self-nominated quality of life domains: review of the literature and guidelines for future studies.

Authors:  Elsbeth F Taminiau-Bloem; Mechteld R M Visser; Carol Tishelman; Margot A Koeneman; Florence J van Zuuren; Mirjam A G Sprangers
Journal:  Qual Life Res       Date:  2010-01-03       Impact factor: 4.147

10.  What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives.

Authors:  Anne Hogden; David Greenfield; Peter Nugus; Matthew C Kiernan
Journal:  Patient Prefer Adherence       Date:  2012-11-27       Impact factor: 2.711

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