Literature DB >> 16116379

Innovative ways of responding to the information needs of people with MS.

Rhona MacLean1, Andrew Russell.   

Abstract

There have been a number of studies looking into the information needs of people with multiple sclerosis (MS). All the studies have shown that people with MS want information tailored to their individual requirements, delivered in different formats and within a time-frame to suit them. This article reviews the studies and demonstrates how two neurology centres in Leeds and York have striven to meet the needs and expectations of the client group. By continuing to include service users in developments, and carrying out audits, these centres are continually aiming to improve services for people with MS, as well as responding to the recommendations in the National Institute for Clinical Excellence guidelines for MS and the recently published Department of Health "National Service Framework for Long-term Conditions".

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Year:  2005        PMID: 16116379     DOI: 10.12968/bjon.2005.14.14.18551

Source DB:  PubMed          Journal:  Br J Nurs        ISSN: 0966-0461


  3 in total

1.  Multiple sclerosis: patients' information sources and needs on disease symptoms and management.

Authors:  Albert I Matti; Helen McCarl; Pamela Klaer; Miriam C Keane; Celia S Chen
Journal:  Patient Prefer Adherence       Date:  2010-06-24       Impact factor: 2.711

2.  Internet usage by patients with multiple sclerosis: implications to participatory medicine and personalized healthcare.

Authors:  Izabella Lejbkowicz; Tamar Paperna; Nili Stein; Sara Dishon; Ariel Miller
Journal:  Mult Scler Int       Date:  2010-06-30

3.  The study circle as a tool in multiple sclerosis patient education in Sweden.

Authors:  Anne-Marie Landtblom; Cecilia Lang; Gullvi Flensner
Journal:  Patient Prefer Adherence       Date:  2008-02-02       Impact factor: 2.711

  3 in total

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