Ylva Orrevall1, Carol Tishelman, Johan Permert. 1. Department for Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden. ylva.orrevall@cfss.ki.se
Abstract
BACKGROUND & AIM: The benefit of home parenteral nutrition (HPN) to advanced cancer patients is often debated and an evidence-base for parenteral nutrition (PN) in palliative care is lacking. The aim of this study is to investigate the experiences of HPN from the perspective of advanced cancer patients and their family members. METHODS: Semi-structured interviews were conducted with 13 advanced cancer patients with experience of HPN and 11 family members. The qualitative data was analyzed inductively using constant comparison. RESULTS: The most salient positive feature of HPN was a sense of relief and security that nutritional needs were met. This was said to have a direct and positive effect on quality of life and on body weight, level of energy, strength, and activity. Positive statements about HPN were often coupled to the benefits of being enrolled in advanced home care. The most salient negative effect of HPN described was related to restrictions in family life and social contacts for the whole family. However, benefits of the HPN treatment were generally said to outweigh negative aspects. CONCLUSION: This study indicates that the interviewed cancer patients and their family members experienced physical, social and psychological benefits from HPN treatment.
BACKGROUND & AIM: The benefit of home parenteral nutrition (HPN) to advanced cancerpatients is often debated and an evidence-base for parenteral nutrition (PN) in palliative care is lacking. The aim of this study is to investigate the experiences of HPN from the perspective of advanced cancerpatients and their family members. METHODS: Semi-structured interviews were conducted with 13 advanced cancerpatients with experience of HPN and 11 family members. The qualitative data was analyzed inductively using constant comparison. RESULTS: The most salient positive feature of HPN was a sense of relief and security that nutritional needs were met. This was said to have a direct and positive effect on quality of life and on body weight, level of energy, strength, and activity. Positive statements about HPN were often coupled to the benefits of being enrolled in advanced home care. The most salient negative effect of HPN described was related to restrictions in family life and social contacts for the whole family. However, benefits of the HPN treatment were generally said to outweigh negative aspects. CONCLUSION: This study indicates that the interviewed cancerpatients and their family members experienced physical, social and psychological benefits from HPN treatment.
Authors: Paolo Cotogni; Luca De Carli; Roberto Passera; Maria Luisa Amerio; Elena Agnello; Maurizio Fadda; Marta Ossola; Taira Monge; Antonella De Francesco; Federico Bozzetti Journal: Cancer Med Date: 2017-05-29 Impact factor: 4.452
Authors: Maria Ines Pinto-Sanchez; Shannon Gadowsky; Suzan McKenzie; Michael J Raphael; Anne Childs; Marroon Thabane; Suzanne Hansen; John K Marshall; David Armstrong Journal: J Can Assoc Gastroenterol Date: 2018-08-10
Authors: Anthony Byrne; Cathy Sampson; Jessica Baillie; Kim Harrison; Ben Hope-Gill; Richard Hubbard; Gareth Griffiths; Annmarie Nelson Journal: BMJ Open Date: 2013-08-07 Impact factor: 2.692