Literature DB >> 16054282

Introduction: Patient organization movements and new metamorphoses in patienthood.

Kyra Landzelius.   

Abstract

In this introduction, we examine health activism as one expression of an emergent 'politics of vitality' or flurry of activity around health matters that includes: advances in technoscientific medicine, healthcare restructurings, and a re-thinking of science-society contracts. In querying politicized mobilizations around 'health matters and the mattering of health,' we provocatively entitle our discussion 'patient organization movements'. This marks an invitation to interrogate (in reverse order) each term along the way, pausing in our concluding discussion to turn our attentions to the patient. The figure of the patient is thematized as an historical inscription and a formidable dimension of personhood under modernity/late modernity. Moreover, we argue that conventional categorizations of the patient are undergoing accelerated processes of change at the present time. We characterize three transformational trends: moves to author and authorize patienthood, mutiny from patienthood, and mutations in the category of the patient. Such metamorphoses in patienthood represent both reflections and repercussions--at once consequences and catalysts--of the proposed politics of vitality. We explore the pluralization of the patient's persona via a closer look at the 11 empirical studies of health activism that comprise this collection.

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Year:  2005        PMID: 16054282     DOI: 10.1016/j.socscimed.2005.06.023

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  8 in total

1.  Exploring the positions of German and Israeli patient organizations in the bioethical context of end-of-life policies.

Authors:  Aviad Raz; Isabella Jordan; Silke Schicktanz
Journal:  Health Care Anal       Date:  2014-06

2.  Informated health and ethical identity management.

Authors:  Joseph Dumit; Nathan Greenslit
Journal:  Cult Med Psychiatry       Date:  2006-06

3.  From healing to witchcraft: on ritual speech and roboticization in the hospital.

Authors:  Adrienne Pine
Journal:  Cult Med Psychiatry       Date:  2011-06

4.  Anti-aging science: The emergence, maintenance, and enhancement of a discipline.

Authors:  Jennifer R Fishman; Robert H Binstock; Marcie A Lambrix
Journal:  J Aging Stud       Date:  2008-12-01

5.  Health activism and the logic of connective action. A case study of rare disease patient organisations.

Authors:  Stefania Vicari; Franco Cappai
Journal:  Inf Commun Soc       Date:  2016-03-21

6.  Disease surveillance infrastructure and the economisation of public health.

Authors:  Claire Laurier Decoteau; Cal Lee Garrett
Journal:  Sociol Health Illn       Date:  2022-08-06

7.  Why New Hybrid Organizations are Formed: Historical Perspectives on Epistemic and Academic Drift.

Authors:  Thomas Kaiserfeld
Journal:  Minerva       Date:  2013-06

8.  Beyond the therapeutic: A Habermasian view of self-help groups' place in the public sphere.

Authors:  Sarah Chaudhary; Mark Avis; Carol Munn-Giddings
Journal:  Soc Theory Health       Date:  2012-10-10
  8 in total

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