Literature DB >> 16047511

An assessment of the feasibility and utility of the MS symptom and impact diary (MSSID).

Joanne Greenhalgh1.   

Abstract

The Multiple Sclerosis Symptom and Impact Diary (MSSID) was developed to provide a more comprehensive assessment of the impact of multiple sclerosis (MS) on HRQoL for use in clinical practice. This paper reports on an assessment of its feasibility and utility in two outpatient samples of people with MS (n = 13 and n = 63) using quantitative and qualitative methods. The response rate in study 2 was 82% and 83% of days were fully completed. Most respondents found the MSSID easy to understand and got into the habit of completing it. Missing items increased over time and those who experienced a relapse had more missing items than those who did not but there was no difference in the number of missed days. Some respondents found completing the MSSID enabled them to manage their lives more effectively and provided useful information to their neurologist. It is concluded that the MSSID is feasible for people with MS to complete and some may find the MSSID helpful as a tool to monitor their condition. Further research is needed to examine clinicians' perceptions of the feasibility and utility of the MSSID within clinical practice.

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Year:  2005        PMID: 16047511     DOI: 10.1007/s11136-004-5389-0

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  32 in total

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Authors:  L Watson; P Little; M Moore; G Warner; I Williamson
Journal:  Fam Pract       Date:  2001-10       Impact factor: 2.267

2.  Patient non-compliance with paper diaries.

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Journal:  BMJ       Date:  2002-05-18

3.  PROBLEMS OF EXPERIMENTAL TRIALS OF THERAPY IN MULTIPLE SCLEROSIS: REPORT BY THE PANEL ON THE EVALUATION OF EXPERIMENTAL TRIALS OF THERAPY IN MULTIPLE SCLEROSIS.

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5.  Referral bias in multiple sclerosis research.

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Journal:  J Clin Epidemiol       Date:  1988       Impact factor: 6.437

6.  The diary as a means of understanding the quality of life of persons with cancer receiving home nursing care.

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Journal:  Cancer Nurs       Date:  1990-06       Impact factor: 2.592

Review 7.  MRC quality of life studies using a daily diary card--practical lessons learned from cancer trials.

Authors:  P Fayers
Journal:  Qual Life Res       Date:  1995-08       Impact factor: 4.147

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Journal:  Med Care       Date:  1989-03       Impact factor: 2.983

9.  Diary keeping in asthma: comparison of written and electronic methods.

Authors:  M E Hyland; C A Kenyon; R Allen; P Howarth
Journal:  BMJ       Date:  1993-02-20

10.  Evaluation of the use of a pain diary in chronic cancer pain patients at home.

Authors:  Rianne de Wit; Frits van Dam; Marianne Hanneman; Linda Zandbelt; Anneke van Buuren; Karin van der Heijden; Gerleen Leenhouts; Simone Loonstra; Huda Huijer Abu-Saad
Journal:  Pain       Date:  1999-01       Impact factor: 6.961

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  2 in total

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Authors:  Vivian W Sung; Melissa A Clark; Eric R Sokol; Charles R Rardin; Deborah L Myers
Journal:  Int Urogynecol J Pelvic Floor Dysfunct       Date:  2006-11-18

Review 2.  Perceived benefits and limitations of using patient-reported outcome measures in clinical practice with individual patients: a systematic review of qualitative studies.

Authors:  Rachel Campbell; Angela Ju; Madeleine T King; Claudia Rutherford
Journal:  Qual Life Res       Date:  2021-09-27       Impact factor: 4.147

  2 in total

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