Literature DB >> 16010258

The language of breathlessness: do families and health care providers speak the same language when describing asthma symptoms?

H Lorrie Yoos1, Harriet Kitzman, Ann McMullen, Kimberly Sidora-Arcoleo, Elizabeth Anson.   

Abstract

INTRODUCTION: Effective communication about symptoms is a critical prerequisite to appropriate treatment. Study aims were to: (a) document the symptoms that children with asthma and their parents associate with asthma, (b) identify differences between the "professional model "of asthma symptoms and the "lay model," (c) describe the family's proposed action in response to symptoms, and (d) investigate the congruence between parental assessment of "good control" and severity obtained using National Asthma Education and Prevention Program criteria.
METHOD: Children with asthma and their parents (N = 228) were recruited from diverse clinical practice sites. Parents and children described symptoms they associated with an asthma exacerbation and their proposed action. Perceived asthma control was compared with a structured assessment of severity.
RESULTS: One hundred and thirty-six unique symptoms were reported. While 78% of parents reported at least one standard asthma symptom, 48% also reported nonstandard asthma symptoms. Sixty-five percent of parents whose children's symptoms were consistent with severe asthma reported "good control." DISCUSSION: Improved communication about symptoms would improve asthma care. Proposed strategies include standardized screening questionnaires to assess symptoms, more frequent routine visits for children with persistent asthma, and wide dissemination of realistic goals for symptom control.

Entities:  

Mesh:

Year:  2005        PMID: 16010258     DOI: 10.1016/j.pedhc.2005.01.010

Source DB:  PubMed          Journal:  J Pediatr Health Care        ISSN: 0891-5245            Impact factor:   1.812


  14 in total

1.  Descriptors of breathlessness in children with persistent asthma.

Authors:  Andrew Harver; Richard M Schwartzstein; Harry Kotses; C Thomas Humphries; Karen B Schmaling; Melanie Lee Mullin
Journal:  Chest       Date:  2010-12-23       Impact factor: 9.410

2.  Illness Experience, Self-Determination, and Recreational Activities in Pediatric Asthma.

Authors:  Peter M Bingham; Ian Crane; Sarah Waterman Manning
Journal:  Games Health J       Date:  2017-03-06

3.  Challenges in providing preventive care to inner-city children with asthma.

Authors:  Arlene M Butz; Joan Kub; Melissa H Bellin; Kevin D Frick
Journal:  Nurs Clin North Am       Date:  2013-02-15       Impact factor: 1.208

4.  Illness representations and cultural practices play a role in patient-centered care in childhood asthma: experiences of Mexican mothers.

Authors:  Kimberly Arcoleo; Luis E Zayas; April Hawthorne; Rachelle Begay
Journal:  J Asthma       Date:  2015-03-10       Impact factor: 2.515

Review 5.  Consumer language, patient language, and thesauri: a review of the literature.

Authors:  Catherine A Smith
Journal:  J Med Libr Assoc       Date:  2011-04

6.  Symptom reporting in childhood asthma: a comparison of assessment methods.

Authors:  J S Halterman; H L Yoos; H Kitzman; E Anson; K Sidora-Arcoleo; A McMullen
Journal:  Arch Dis Child       Date:  2006-05-16       Impact factor: 3.791

7.  Detection and home management of worsening asthma symptoms.

Authors:  Jane Garbutt; Gabriellle Highstein; Kyle A Nelson; Katherine Rivera-Spoljaric; Robert Strunk
Journal:  Ann Allergy Asthma Immunol       Date:  2009-12       Impact factor: 6.347

Review 8.  Will symptom-based therapy be effective for treating asthma in children?

Authors:  Marianne Nuijsink; Johan C De Jongste; Mariëlle W Pijnenburg
Journal:  Curr Allergy Asthma Rep       Date:  2013-10       Impact factor: 4.806

9.  Symptoms, feelings, activities and medication use in adolescents with uncontrolled asthma: lessons learned from asthma diaries.

Authors:  Hyekyun Rhee; Eileen Fairbanks; Arlene Butz
Journal:  J Pediatr Nurs       Date:  2013-05-15       Impact factor: 2.145

Review 10.  Shared decision making in school age children with asthma.

Authors:  Arlene M Butz; Jennifer M Walker; Margaret Pulsifer; Marilyn Winkelstein
Journal:  Pediatr Nurs       Date:  2007 Mar-Apr
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