Literature DB >> 16009294

Support requirements for caregivers of patients with palliative cancer.

Feyuna F I Jansma1, Lidwien M Schure, Betty Meyboom de Jong.   

Abstract

Health policy is shifting from professional to informal care. Studies have shown that informal caregivers provide an average of 55% of the needed care. The aim of this study was to get insight in the needs of the caregivers of patients with palliative cancer and how to address those needs with a support program. A questionnaire developed on the basis of 26 interviews was sent to 65 caregivers. The respondents indicate that they do need support, that communication is considered the most important factor followed by practical information about nursing skills, the caregivers' own health and finally social network. The respondents also expressed a need for support after the patient died during bereavement. Most respondents stated they wanted to participate in a support program at least partly together with the patient, at the patient's home and guided by a supporter who has experience with loss and is a professional.

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Year:  2005        PMID: 16009294     DOI: 10.1016/j.pec.2004.08.008

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  12 in total

1.  Hospice at home service: the carer's perspective.

Authors:  Dorry McLaughlin; Kate Sullivan; Felicity Hasson
Journal:  Support Care Cancer       Date:  2006-08-30       Impact factor: 3.603

2.  Students meeting with caregivers of cancer patient: results of an experience-based learning project.

Authors:  Beste M Atasoy; Ozlem Sarikaya; M Kemal Kuscu; Merve Yondem; Elif Buyukkara; E Gokcen Eken; Figen Kahyaoglu
Journal:  J Cancer Educ       Date:  2012-12       Impact factor: 2.037

Review 3.  Understanding bereavement: what every oncology practitioner should know.

Authors:  Elizabeth Kacel; Xin Gao; Holly G Prigerson
Journal:  J Support Oncol       Date:  2011-09-24

4.  Bereavement Practices Among Head and Neck Cancer Surgeons.

Authors:  Roberto N Solis; Nicole I Farber; Nathan Fairman; Nuen T Yang; Sandra L Taylor; Marianne Abouyared; Arnaud F Bewley; D Gregory Farwell; Andrew C Birkeland
Journal:  Laryngoscope       Date:  2022-01-29       Impact factor: 2.970

5.  Caring for the brain tumor patient: family caregiver burden and unmet needs.

Authors:  Jane R Schubart; Mable B Kinzie; Elana Farace
Journal:  Neuro Oncol       Date:  2007-11-09       Impact factor: 12.300

6.  A pilot study on the influence of an individualized and experiential training on cancer caregiver's self-efficacy in home care and symptom management.

Authors:  Cristina C Hendrix; Amy Abernethy; Rick Sloane; Joey Misuraca; Joseph Moore
Journal:  Home Healthc Nurse       Date:  2009-05

7.  Bereaved cancer carers' experience of and preference for palliative care.

Authors:  Natasha Sekelja; Phyllis N Butow; Martin H N Tattersall
Journal:  Support Care Cancer       Date:  2009-10-12       Impact factor: 3.603

8.  How hospice staff members prepare family caregivers for the patient's final days of life: an exploratory study.

Authors:  Karen A Kehl
Journal:  Palliat Med       Date:  2014-09-23       Impact factor: 4.762

9.  Caregivers' active role in palliative home care - to encourage or to dissuade? A qualitative descriptive study.

Authors:  Anna Weibull; Frede Olesen; Mette Asbjoern Neergaard
Journal:  BMC Palliat Care       Date:  2008-09-16       Impact factor: 3.234

10.  "It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life.

Authors:  Emily Harrop; Anthony Byrne; Annmarie Nelson
Journal:  BMC Palliat Care       Date:  2014-04-17       Impact factor: 3.234

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