Literature DB >> 16006200

Cystic fibrosis disclosure may minimize risk of negative peer evaluations.

Kristoffer S Berlin1, Daniel A Sass, W Hobart Davies, Matthew D Jandrisevits, Anthony A Hains.   

Abstract

BACKGROUND: Given the relatively lower body weight associated with cystic fibrosis (CF) and the visible regimen associated with eating, there is a risk that individuals with CF may be mistakenly perceived to have an eating disorder or otherwise be negatively evaluated. Based upon a theoretical model, this study explored whether disclosing CF would curtail negative peer perceptions.
METHODS: Young adult respondents (N = 391) read vignettes that varied in a 2 (male vs. female character) x 2 (preventative disclosure of disorder vs. nondisclosure) design and answered 28 questions, which resulted in three subscales that were validated using confirmatory factor analysis: Abnormal Behavior, Hiding an Eating Disorder, and Worry. Vignettes depicted a lunchtime interaction including concerns about gaining weight and taking enzymes before eating.
RESULTS: Disclosure of CF significantly reduced perceptions of abnormal behavior, ameliorated perceptions of an eating disorder, and alleviated respondents' worries. Manipulations of vignette character gender did not result in any significant differences; however, female respondents reported significantly more worry for the character than males.
CONCLUSIONS: Individuals who disclose their CF may potentially curtail negative peer perceptions. Those who choose not to disclose may risk having their thinness and appropriate self-care misperceived as signs of an eating disorder.

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Mesh:

Year:  2005        PMID: 16006200     DOI: 10.1016/j.jcf.2005.05.012

Source DB:  PubMed          Journal:  J Cyst Fibros        ISSN: 1569-1993            Impact factor:   5.482


  4 in total

Review 1.  Developmental and psychosocial issues in cystic fibrosis.

Authors:  Michelle M Ernst; Mark C Johnson; Lori J Stark
Journal:  Child Adolesc Psychiatr Clin N Am       Date:  2010-04

2.  A Qualitative Study to Explore the Views and Attitudes towards Prenatal Testing in Adults Who Have Muenke Syndrome and their Partners.

Authors:  Julie Phipps; Heather Skirton
Journal:  J Genet Couns       Date:  2017-03-22       Impact factor: 2.537

3.  Assessing disease disclosure in adults with cystic fibrosis: the Adult Data for Understanding Lifestyle and Transitions (ADULT) survey Disclosure of disease in adults with cystic fibrosis.

Authors:  Avani C Modi; Alexandra L Quittner; Michael P Boyle
Journal:  BMC Pulm Med       Date:  2010-09-10       Impact factor: 3.317

4.  The centrality of disclosure decisions to the illness experience for youth with chronic conditions: A qualitative study.

Authors:  Roberta Lynn Woodgate; Pauline Tennent; Sarah Barriage; Nicole Legras
Journal:  J Health Psychol       Date:  2020-09-28
  4 in total

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