Literature DB >> 15971566

The limits of privacy: surveillance and the control of disease.

Ronald Bayer1, Amy Fairchild.   

Abstract

What justified the Center for Disease Control's 1999 determination to require HIV case reporting? Why were names necessary? Why did opponents view the reporting of names with such alarm? This paper retells the history of the encounters over HIV reporting that had occurred since the mid 1980s. In placing HIV reporting within a larger context, however, we understand the clash between privacy and public health necessity as a complex issue, both in historical and contemporary practice. By underscoring the similarities and differences with the histories of surveillance for other infectious diseases, vaccination, occupational diseases, cancer, and birth defects, and HIV reporting internationally, we can better understand the implications of the HIV debate for an ethics of surveillance more generally.

Entities:  

Keywords:  Health Care and Public Health

Mesh:

Year:  2002        PMID: 15971566     DOI: 10.1023/A:1015698411824

Source DB:  PubMed          Journal:  Health Care Anal        ISSN: 1065-3058


  25 in total

1.  Confidential Spanish registry of HIV-infected individuals.

Authors:  X Bosch
Journal:  JAMA       Date:  1999-03-17       Impact factor: 56.272

2.  Social policy and city politics: tuberculosis reporting in New York, 1889-1900.

Authors:  D M Fox
Journal:  Bull Hist Med       Date:  1975       Impact factor: 1.314

3.  The Michigan Birth Defects Registry: development and operation.

Authors:  J G Hogan
Journal:  J AHIMA       Date:  1994-06

4.  Guidelines for national human immunodeficiency virus case surveillance, including monitoring for human immunodeficiency virus infection and acquired immunodeficiency syndrome. Centers for Disease Control and Prevention.

Authors: 
Journal:  MMWR Recomm Rep       Date:  1999-12-10

5.  Need for Cancer Morbidity Statistics.

Authors:  F C Wood
Journal:  Am J Public Health Nations Health       Date:  1930-01

6.  Ethical principles for the conduct of human subject research: population-based research and ethics.

Authors:  L Gostin
Journal:  Law Med Health Care       Date:  1991 Fall-Winter

7.  Update: public health surveillance for HIV infection--United States, 1989 and 1990.

Authors: 
Journal:  MMWR Morb Mortal Wkly Rep       Date:  1990-11-30       Impact factor: 17.586

Review 8.  Public confidence in public health research ethics.

Authors:  W K Mariner
Journal:  Public Health Rep       Date:  1997 Jan-Feb       Impact factor: 2.792

9.  Ethical problems in register based medical research.

Authors:  G Hermerén
Journal:  Theor Med       Date:  1988-06

10.  The cancer registry in cancer control: an overview.

Authors:  C S Muir; E Démaret; P Boyle
Journal:  IARC Sci Publ       Date:  1985
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  5 in total

1.  Ethics in public health research: privacy and public health at risk: public health confidentiality in the digital age.

Authors:  Julie Myers; Thomas R Frieden; Kamal M Bherwani; Kelly J Henning
Journal:  Am J Public Health       Date:  2008-04-01       Impact factor: 9.308

2.  Taken to court: defending public health authority to access medical records during an outbreak investigation.

Authors:  Elizabeth R Daly; Jeanne P Herrick; Elizabeth X Maynard; José T Montero; Christine Adamski; Jodie Dionne-Odom; Elizabeth A Talbot; Sharon Alroy-Preis
Journal:  Public Health Rep       Date:  2015 May-Jun       Impact factor: 2.792

3.  The effects of opt-out legislation on data collection and surveillance of birth defects by the New Hampshire Birth Conditions Program, New Hampshire, United States, 2007-2009.

Authors:  Simerpal Gill; Stephanie Miller; Cheryl Broussard; Jennita Reefhuis
Journal:  J Registry Manag       Date:  2012

4.  SARS in Singapore: surveillance strategies in a globalising city.

Authors:  Peggy Teo; Brenda S A Yeoh; Shir Nee Ong
Journal:  Health Policy       Date:  2004-12-07       Impact factor: 2.980

5.  Challenges created by data dissemination and access restrictions when attempting to address community concerns: individual privacy versus public wellbeing.

Authors:  Amy Colquhoun; Laura Aplin; Janis Geary; Karen J Goodman; Juanita Hatcher
Journal:  Int J Circumpolar Health       Date:  2012-05-08       Impact factor: 1.228

  5 in total

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