Literature DB >> 15950094

Desperately seeking "normal": the promise and perils of living with kidney transplantation.

Megan Crowley-Matoka1.   

Abstract

Organ transplantation offers a dramatic example of the promises for health held out by biomedicine-and thus, a productive vantage point from which to interrogate those promises. Drawing on ethnographic research on kidney transplantation in Guadalajara, Mexico, this article examines the version of "health" offered to patients through transplantation. The paper explores patients' transplant trajectories as they move from learning to desire a transplant to actually receiving one and living with it over the long term, all within particular structuring sociocultural and political economic conditions. The article analyzes how transplanted patients are forced to come to terms with the contingent states of "health" and "normality" wrought by transplantation as they carve out an existence in the persistently liminal spaces between the roles of "sick" and "healthy," dependent patient and fully contributing family member.

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Year:  2004        PMID: 15950094     DOI: 10.1016/j.socscimed.2004.08.043

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  10 in total

1.  Differences between paediatric and adult presentation of ESKD in attainment of adult social goals.

Authors:  Helen Lewis; Stephen D Marks
Journal:  Pediatr Nephrol       Date:  2014-07-02       Impact factor: 3.714

2.  End-of-Life Care among US Adults with ESKD Who Were Waitlisted or Received a Kidney Transplant, 2005-2014.

Authors:  Catherine R Butler; Peter P Reese; James D Perkins; Yoshio N Hall; J Randall Curtis; Manjula Kurella Tamura; Ann M O'Hare
Journal:  J Am Soc Nephrol       Date:  2020-09-09       Impact factor: 10.121

3.  EXPloring attitudes and factors influencing reproductive Choices in kidney Transplant patients (The EXPECT-study).

Authors:  Marleen C van Buren; Denise K Beck; A Titia Lely; Jacqueline van de Wetering; Emma K Massey
Journal:  Clin Transplant       Date:  2021-09-28       Impact factor: 3.456

4.  Celebrities and spiritual gurus: Comparing two biographical accounts of kidney transplantation and recovery.

Authors:  Rose Richards
Journal:  Afr J Disabil       Date:  2015-05-08

Review 5.  Young adults' perspectives on living with kidney failure: a systematic review and thematic synthesis of qualitative studies.

Authors:  Phillippa K Bailey; Alexander J Hamilton; Rhian L Clissold; Carol D Inward; Fergus J Caskey; Yoav Ben-Shlomo; Amanda Owen-Smith
Journal:  BMJ Open       Date:  2018-01-10       Impact factor: 2.692

6.  Perspectives on life participation by young adults with chronic kidney disease: an interview study.

Authors:  Jasmijn Kerklaan; Elyssa Hannan; Camilla Hanson; Chandana Guha; Yeoungjee Cho; Martin Christian; Lorraine Hamiwka; Jessica Ryan; Aditi Sinha; Germaine Wong; Jonathan Craig; Jaap Groothoff; Allison Tong
Journal:  BMJ Open       Date:  2020-10-16       Impact factor: 2.692

7.  Interventions for and experiences of shared decision-making underpinning reproductive health, family planning options and pregnancy for women with or at high risk of kidney disease: a systematic review and qualitative framework synthesis.

Authors:  Leah Mc Laughlin; Barbara Neukirchinger; Jane Noyes
Journal:  BMJ Open       Date:  2022-08-08       Impact factor: 3.006

8.  Work of being an adult patient with chronic kidney disease: a systematic review of qualitative studies.

Authors:  Javier Roberti; Amanda Cummings; Michelle Myall; Jonathan Harvey; Kate Lippiett; Katherine Hunt; Federico Cicora; Juan Pedro Alonso; Carl R May
Journal:  BMJ Open       Date:  2018-09-04       Impact factor: 2.692

9.  Organ Transplant Recipients' Experiences of Physical Activity: Health, Self-Care, and Transliminality.

Authors:  Gareth Wiltshire; Nicola J Clarke; Cassandra Phoenix; Carl Bescoby
Journal:  Qual Health Res       Date:  2020-10-30

10.  Waiting, strange: transplant recipient experience, medical time and queer/crip temporalities.

Authors:  Sara Wasson
Journal:  Med Humanit       Date:  2021-05-28
  10 in total

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