Literature DB >> 15948877

Development of a measure of the health-related quality of life of children in public care.

P Upton1, A Maddocks, C Eiser, P M Barnes, J Williams.   

Abstract

OBJECTIVES: To validate PedsQL for children in public care and develop an 'in-care' module. DESIGN AND
SETTING: Questionnaire development and validation. Questionnaires were completed in placement. A total of 69 children in public care (aged 8-18 years) and their carers were recruited through routine paediatric assessments, and 662 children not in public care were recruited from local schools. MEASURES: Self- and proxy-report versions of PedsQL generic module and the 'in-care' module.
RESULTS: Cronbach's alpha for the generic module ranged from 0.66 to 0.88 and from 0.74 to 0.90 for self- and proxy-report respectively. Lower scores were reported for children in care compared with peers living at home for proxy- and self-report. Proxy- and self-report correlation ranged from 0.43 to 0.60 (P < 0.001). Cronbach's alpha for the in-care module was 0.87 and 0.91 for self- and proxy-report respectively. Proxy- and self-report scores showed significant correlation with generic module scores. The highest correlations were seen with sub-scales measuring Psychosocial Functioning (e.g. Emotional Functioning: Pearson's r = 0.67 and 0.59, P < 0.001 for self- and proxy-report respectively). Proxy- and self-report correlation was 0.45 (P < 0.001).
CONCLUSIONS: We found PedsQL generic module and the newly developed 'in-care' module to have excellent internal reliability for self- and proxy-report. Validity was established for both measures and significant correlation found between child and proxy ratings. Although further testing of the measures is recommended, both have potential value in assessing the success of placements and could provide a reliable and valid tool for individual patient analysis in clinical practice and for research with this group.

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Mesh:

Year:  2005        PMID: 15948877     DOI: 10.1111/j.1365-2214.2005.00520.x

Source DB:  PubMed          Journal:  Child Care Health Dev        ISSN: 0305-1862            Impact factor:   2.508


  3 in total

1.  Measuring health-related quality of life in young adolescents: reliability and validity in the Norwegian version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales.

Authors:  Trude Reinfjell; Trond H Diseth; Marijke Veenstra; Arne Vikan
Journal:  Health Qual Life Outcomes       Date:  2006-09-14       Impact factor: 3.186

2.  Measuring adolescents' HRQoL via self reports and parent proxy reports: an evaluation of the psychometric properties of both versions of the KINDL-R instrument.

Authors:  Michael Erhart; Ute Ellert; Bärbel-Maria Kurth; Ulrike Ravens-Sieberer
Journal:  Health Qual Life Outcomes       Date:  2009-08-26       Impact factor: 3.186

3.  Validation of the Korean version of the pediatric quality of life inventory 4.0 (PedsQL) generic core scales in school children and adolescents using the Rasch model.

Authors:  Seung Hee Kook; James W Varni
Journal:  Health Qual Life Outcomes       Date:  2008-06-02       Impact factor: 3.186

  3 in total

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