Literature DB >> 15934102

Validating the International Classification of Functioning, Disability and Health Comprehensive Core Set for Rheumatoid Arthritis from the patient perspective: a qualitative study.

Tanja A Stamm1, Alarcos Cieza, Michaela Coenen, Klaus P Machold, Valerie P K Nell, Josef S Smolen, Gerold Stucki.   

Abstract

OBJECTIVE: To validate the International Classification of Functioning, Disability and Health (ICF) Comprehensive Core Set for Rheumatoid Arthritis (RA) from the patient perspective.
METHODS: Patients with RA were interviewed about their problems in daily functioning. Interviews were tape recorded and transcribed verbatim. Interview texts were divided into meaning units. The concepts contained in these meaning units were linked to the ICF according to 10 established linking rules. Of the transcribed data, 15% were analyzed and linked by a second health professional. The degree of agreement was calculated using the kappa statistic.
RESULTS: Twenty-one patients were interviewed. Two hundred twenty different concepts contained in 367 meaning units were identified in the qualitative analysis of the interviews and linked to 109 second-level ICF categories. Of the 76 second-level categories from the ICF RA Core Set, 63 (83%) were also found in the interviews. Twenty-five second-level categories, which are not part of the current ICF RA Core Set, were identified in the interviews. The result of the kappa statistic for agreement was 0.62 (95% boot-strapped confidence interval 0.59-0.66).
CONCLUSION: The validity of the ICF RA Core Set was supported by the perspective of individual patients. However, some additional issues raised in this study but not covered in the current ICF RA Core Set need to be investigated.

Entities:  

Mesh:

Year:  2005        PMID: 15934102     DOI: 10.1002/art.21159

Source DB:  PubMed          Journal:  Arthritis Rheum        ISSN: 0004-3591


  26 in total

1.  Are they relevant? A critical evaluation of the international classification of functioning, disability, and health core sets for osteoarthritis from the perspective of patients with knee osteoarthritis in Singapore.

Authors:  F Xie; J Thumboo; K-Y Fong; N-N Lo; S-J Yeo; K-Y Yang; S-C Li
Journal:  Ann Rheum Dis       Date:  2006-01-05       Impact factor: 19.103

2.  Reliability of the ICF Core Set for rheumatoid arthritis.

Authors:  Till Uhlig; Solvår Lillemo; Rikke Helene Moe; Tanja Stamm; Alarcos Cieza; Annelies Boonen; Petter Mowinckel; Tore Kristian Kvien; Gerold Stucki
Journal:  Ann Rheum Dis       Date:  2007-01-12       Impact factor: 19.103

Review 3.  Thirty years of portraying oral health through models: what have we accomplished in oral health-related quality of life research?

Authors:  Mario A Brondani; Michael I MacEntee
Journal:  Qual Life Res       Date:  2013-10-05       Impact factor: 4.147

4.  Potential of the HAQ score as clinical indicator suggesting comprehensive multidisciplinary assessments: the Swedish TIRA cohort 8 years after diagnosis of RA.

Authors:  Ingrid Thyberg; Ö Dahlström; M Björk; P Arvidsson; M Thyberg
Journal:  Clin Rheumatol       Date:  2012-01-17       Impact factor: 2.980

5.  The effect of the Arthritis Self-Management Program on outcome in African Americans with rheumatoid arthritis served by a public hospital.

Authors:  Doyt L Conn; Yi Pan; Kirk A Easley; Dawn L Comeau; Joyce P Carlone; Steven D Culler; Athan Tiliakos
Journal:  Clin Rheumatol       Date:  2012-09-29       Impact factor: 2.980

6.  Individual interviews and focus groups in patients with rheumatoid arthritis: a comparison of two qualitative methods.

Authors:  Michaela Coenen; Tanja A Stamm; Gerold Stucki; Alarcos Cieza
Journal:  Qual Life Res       Date:  2011-06-25       Impact factor: 4.147

7.  Drug-free holiday in patients with rheumatoid arthritis: a qualitative study to explore patients' opinion.

Authors:  I M Markusse; G Akdemir; T W J Huizinga; C F Allaart
Journal:  Clin Rheumatol       Date:  2014-01-28       Impact factor: 2.980

Review 8.  [Using the International Classification of Functioning, Disability, and Health in rheumatologic rehabilitation].

Authors:  M Weigl; S R Schwarzkopf; G Stucki
Journal:  Z Rheumatol       Date:  2008-11       Impact factor: 1.372

9.  Functioning and health in patients with cancer on home-parenteral nutrition: a qualitative study.

Authors:  Martin Mueller; Stefanie Lohmann; Paul Thul; Arved Weimann; Eva Grill
Journal:  Health Qual Life Outcomes       Date:  2010-04-16       Impact factor: 3.186

10.  Validation of the International Classification of Functioning, Disability and Health Core Set for chronic widespread pain from the perspective of fibromyalgia patients.

Authors:  Robin Hieblinger; Michaela Coenen; Gerold Stucki; Andreas Winkelmann; Alarcos Cieza
Journal:  Arthritis Res Ther       Date:  2009-05-14       Impact factor: 5.156

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